Ear Tinnitus and Pain with Neuropathy

I too have tinnitus. I have been told that a hearing aid might help and I’m thinking about trying one.

Please change Dr.ASAP. GOD BLESS YOU!

I have had tinnitus for many years. It is accompanied by hyperacusis and hearing loss. Hearing aids help by augmenting ambiant noise and contain tinnitus masking sounds as well. Nature sounds are also very helpful especially water based sounds like rain, brooks, streams, ocean sounds. If you search for different sounds on the internet you will find the ones that help you the most. You can download them onto your cell phone and listen to them via ear devices. Your hearing aids can be obtained with Bluetooth and you will be able to listen to music, nature sounds etc. These are all things that help you cope with tinnitus, obviously they are not a cure. When I asked my doctor whether there is a cure on the horizon he said no but he asked that I please let him know if I discover one!

,,,me too - and I "do" realize it could be worse but it is life changing and I am not the person I used to be and don't even like myself sometimes, no not life threatening but life altering and mood and personality altering....tinnitus hyperacusis echo pain pressure and now musical ear, wake up to strangest of noises and chanting .... I try to be positive but wearing me, and all of us, down..........and 40 yr happy marriage going down the drain..... !!

Cheruip, I hear you (along with all that noise in my head that I endure day in and day out!) I wake up in the morning wondering how I am going to get through another day, but somehow I do. With hearing aids that have tinnitus maskers, ear buds with nature sounds and music, TV, stero or just anything that can help. Lucky me, my husband is sympathetic and says he wishes he could help. I know, he feels helpless not being able to do anything but take household chores off my hands. I guess tinnitus is especially bad because others can’t hear it. However I have read that on an MRI the areas of the brain where tinnitus shows up are really bright showing lots of activity. I have not had an MRI but I understand hearing protection is essential with people that have tinnitus or hyperacusis.

I have tinnitus. My grandfather got tinnitus and then peripheral neuropathy then he developed dementia.
My father followed the exact same pattern decades of tinnitus, the neuropathy, then dementia. I have had tinnitus for nearly 20 years. I have found out I may have the beginnings of dementia. I only discovered it through some research I was doing and had a SPECT scan for that purpose. The psychiatrist that did the scan thought it was either brain damage from a head injury or the beginning of a pre-frontal dementia. I have not had a head injury that I am aware of. I have occasional nerve pains in my feet but not very often. Are you aware of a genetic pattern of tinnitus, followed by neuropathy then dementia? Or any nervous system disorder that follows this pattern.

I can only speak for myself. I've had tinnitus for 22 years as a result of a sober fall down a flight of stairs on my back. I've had diagnosed Neuropathy for 3 years, of course I'd had it much longer, but the pain meds I was taking for chronic pain, masked it. Only after I tried to come off the medication did a Neurologist look me in the eye and told me that I had severe axonal neuropathy (whole body) even my face. Not all days are unbearable, I call it a different ride everyday. I know Neuropathy did not cause my tinnitus, I believe it is a vestibular condition caused from the fall. Hope this helps.

Welcome @terryarlen and @mstrplmber. I'm glad to see that you two have connected and shared your experience with tinnitus and neuropathy. It does help to know you are not alone and hopefully sharing experiences can provide help to others.

@terryarlen, Does this condition follow the pattern you mentioned?:
--- Hereditary sensory and autonomic neuropathy type 1E: https://rarediseases.info.nih.gov/diseases/11927/index.

@mstrplmber, You mentioned not all days are unbearable. The Foundation for Peripheral Neuropathy has some information you might find helpful here - https://www.foundationforpn.org/living-well/. Have you tried any complementary or alternative treatments to see if they might provide some relief?

I'M sorry for your situation. I"M in constant pain. I sleep well by using cannibis. During the day Tramadol helps.

My daughter is 39 and she just came back from do some diving in Honduras (and has done this many times)…but now she feels she has the symptoms of this Mail de debarquement. Fatigue, can’t easily look at spread sheets at work, etc. She has a dr’s appt on 3/24 with ENT. I hope so much that she does not have this; it’s so rare and you never know if it’s forever or how long it will last.