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Body vibrations when falling asleep or waking?

Sleep Health | Last Active: Dec 5 6:07am | Replies (465)

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@arthur57

Thanks John for asking about this. I would love to know what supplements the neurologist recommended. My doctor laughed when I asked about seeing neurologist, he's really not taking this seriously and frankly just doesn't understand it and is in the dark just like everyone else I guess at this point. I continue to have vibrations anytime I sleep. Very frustrating. I'm praying one of these national long hauler clinics figures out something in the not too distant future.

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Replies to "Thanks John for asking about this. I would love to know what supplements the neurologist recommended...."

Hi @arthur57, It looks like @vitaminnd only posted the one time in Sept 2022 and may no longer be following Connect. I did find some possibilities that you can discuss with your doctor or maybe a pharmacist.

"What supplements reduce neuroinflammation?
Vitamin C, vitamin E, vitamin D, and riboflavin are key dietary antioxidants which simultaneously protect against excitotoxicity, oxidative stress, and neuroinflammation."
--- Micronutrients May Be a Unique Weapon Against the Neurotoxic Triad of Excitotoxicity, Oxidative Stress and Neuroinflammation: A Perspective:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8492967/

Mine happen only AFTER I have been asleep too. I posted elsewhere that I had a sleep study and slept with nasal canula and didn't have vibrations for a week and a half after. They started back slowly and are now every night. I told my neurologist I think it's from injury to phrenic nerve when I swallowed a huge gulp of air taking my meds. That'll do it. The diaphragm controls your breathing and it makes sense that having air forced into your lungs, then they stop. He wanted me to take Fycompa but after reading up on it I decided not to. I've got a cpap on back order and if it'll stop these vibrations, I'll use it. I can lie on the bed for 5 hours watching movies and not have any. I go to sleep and 3-4 later, I wake up and I can't go back to sleep because they don't stop until I get up. I've been keeping journal and rating them on scale. When they are a level 8-10, I have to sit on the edge of bed a minute because my whole insides are shaking. I wish to God someone would take this seriously and do study or something. My neurologist said he thinks it's from overactive central nervous system but I want to know what EXACTLY what is going on in my body to cause it.