Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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bettylb | @bettylb | Feb 26, 2023

In reply to @bruceandruth1970 "Well apparently I can’t type! June 2022!" + (show)

Thanks. We hope to get back on Evenity within a couple of months but might be on a timeline similar to yours. We’ll learn more this week from the Endodontist and the Rheumatologist.

ladydiscdy | @ladydiscdy | Feb 26, 2023

In reply to @windyshores "@ladydiscdy and sedrake51 why transition from Evenity to Reclast? Why not Tymlos or Forteo?" + (show)

I went with my Doctor’s recommendation, she has my health history and took that into consideration. Some of the other medications were not optimal choices.

nyc441 | @nyc441 | Feb 27, 2023

In reply to @jasnat "Hi Lynester: I started taking Evinity 9 months ago so have had 18 shots (2 each..." + (show)

Just wondering what your results were after a year of being on EVENITY and have you continued with anything else? I’m considering EVENITY as my spine is -4.4 but very nervous about possible side effects Thank you

bruceandruth1970 | @bruceandruth1970 | Feb 27, 2023

In reply to @bettylb "Thanks. We hope to get back on Evenity within a couple of months but might be..." + (show)

I’m anxious to know what your doctors tell you about resuming Evenity.

2121 | @leslie2121 | Feb 27, 2023

In reply to @trathfon62 "Hi, I was wondering how you did on Evenity? I am supposed to take it but..." + (show)

I stopped after 8 months then did Reclast 3 months ago. My repeat dexascan shows 40% improvement in my lumbar spine. Going from T score of 4.0 to 2.7 for total lumbar spine.
Hips improved almost as much but they are still barely osteopenia.
So very encouraging!!

bettylb | @bettylb | Feb 27, 2023

In reply to @bruceandruth1970 "I’m anxious to know what your doctors tell you about resuming Evenity." + (show)

Will definitely let you know.

bruceandruth1970 | @bruceandruth1970 | Feb 27, 2023

In reply to @bettylb "Will definitely let you know." + (show)

Thank you.

kolika | @kolika | Feb 27, 2023

In reply to @ladydiscdy "I have taken Evenity; I had only 3 of the 12 doses because I had some..." + (show)

Hello ladydiacdy. I have only had one dose, the 2nd coming this week. Can you please tell us the side effects you experienced? I'm hoping that I will have the same easy time with subsequent shots but have thought about the possibility that additional shots could be difficult. I'm sorry you had to stop and hope Reclast will be the right med for you.

hsum4 | @hsum4 | Feb 27, 2023

In reply to @cat714 "What were your symptoms?" + (show)

I was told when I was taking it that I "was" a guinea pig. That really bothered me. I stopped the injections after taking several of them. My back pain became worse during the injections so I opted to stop them. I'm slowly feeling better. I went back to Prolia every 6 months. Evenity is so new that I don't think the bugs are all out of it.

hsum4