Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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sedrake51 | @sedrake51 | Feb 25, 2023

In reply to @ladydiscdy "I have taken Evenity; I had only 3 of the 12 doses because I had some..." + (show)

Smart woman! I only had one set of Evenity injections in January with horrendous side effects and chose not to receive another set. I, too, do not wish to be an experimental subject. Evenity is not ready for the market yet in my humble opinion. Hope that Reclast is working for you. Please keep us posted on your progress.

trathfon62 | @trathfon62 | Feb 25, 2023

In reply to @lynesther "I mean it is -3.2" + (show)

Hi,
I was wondering how you did on Evenity? I am supposed to take it but am so worried about possible side effects. Did you get through all 12 months? How was your T-score afterwards? I hope all went well.

hudsonlady | @hudsonlady | Feb 26, 2023

In reply to @bettylb "Can you tell me how long you were off of Evenity from the time you stopped..." + (show)

I've had two injections, then stopped for dental extraction. This is all very new so there doesn't seem to be any clear direction. Very hard to get recommendations from doctor and Evenity. However dental surgeon researched and suggests extraction + two weeks checkup + second two weeks checkup + 1 month = 2 months before restarting injections. I'll report back as things develop.

cat714 | @cat714 | Feb 26, 2023

In reply to @ladydiscdy "I have taken Evenity; I had only 3 of the 12 doses because I had some..." + (show)

What were your symptoms?

windyshores | @windyshores | Feb 26, 2023

In reply to @sedrake51 "Smart woman! I only had one set of Evenity injections in January with horrendous side effects..." + (show)

@ladydiscdy and sedrake51 why transition from Evenity to Reclast? Why not Tymlos or Forteo?

2121 | @leslie2121 | Feb 26, 2023

In reply to @ladydiscdy "I have taken Evenity; I had only 3 of the 12 doses because I had some..." + (show)

I’m curious what those were- do you mind sharing those?
I managed to get 8 months before stopping and then did a Reclast infusion.
I got an itchy scalp rash, fatigue and worst of all, brain fog.
It stopped once I stopped Evenity.

ladydiscdy | @ladydiscdy | Feb 26, 2023

In reply to @leslie2121 "I’m curious what those were- do you mind sharing those? I managed to get 8 months..." + (show)

When I had my first Evenity treatment, I immediately had face and neck flushing, tingling around my mouth that lasted for several days. The second dose, I had the same thing but it lasted less time, dosage number 3 about the same. I just wasn’t comfortable with how it was making me feel. I think we made the right decision transitioning to Reclast. It’s been around longer so there is more data regarding it.