Agent Orange and Neurological Disorders

I just read a post from a veteran who discussed the effects of Agent Orange and Parkinson's Disease. It made me wonder if there are others who have had similar experiences? If so, is there anything you have learned from your medical team and/or the VA regarding this? Please feel free to share your story.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@jdesan

I was urged to apply for Sericce connected Mediacl Issues from agent Orange (Dioxin ) The VA asked for Scientific and Medical Evidence that my thyroid issue was caused by my Vietnam Service and exposure to Agent Orange. . Of course no way in Hell I can provide that. But searching for info about Dioxin and came across posts here and was shocked at the Myriad of health issues caused by Dioxin and even how it affected their Children! My Daughter has MS. It hiurts to think it may have been caused by me.

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This is what anger me, the daughter of a Vet.

I have fibro, I have degenerative disc disease and numerous neurological issues.

And every doctor at every new symptom says, "But you are younger than most patients with this."

But US military doesn't want children of AO Vets studied because that's liability and responsibility.

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@vetdaughter

This is what anger me, the daughter of a Vet.

I have fibro, I have degenerative disc disease and numerous neurological issues.

And every doctor at every new symptom says, "But you are younger than most patients with this."

But US military doesn't want children of AO Vets studied because that's liability and responsibility.

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I’m so sorry for what you’re having to go through. There are countless casualties of this horrific chemical which has left the victims feeling bitter and helpless. My heart goes out to you and your family.

My brother was a victim of agent orange after he and his fellow infantrymen were doused with the fluid while training in the rainforests of Washington state in the 60s. He was in the hospital for 2 weeks and then honorably discharged after being too ill to remain in the army. He never fully recovered.
The military disavowed any responsibility for his illness and sadly, he died 4 years later at the age of 27 with complications from Hodgkin’s lymphoma from the chemical.

It’s sad to hear that subsequent generations of our soldiers are also victims of ‘collateral damage’ with how that chemical altered the DNA, causing all these later issues. I wish I had something to offer you more than just my empathy and sympathy for what you’re going through. I do hope you find some answers.

Have you looked at the links @johnbishop provided on Agent Orange?

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@johnjames

Vietnam War veterans with prior exposure to the herbicide Agent Orange may be at higher risk for certain types of skin cancer, suggests a report in the February issue of Plastic and Reconstructive Surgery®, the official medical journal of the American Society of Plastic Surgeons (ASPS).
Skin Cancers Present in About Half of Vets Exposed to Agent Orange
During the Vietnam War, Agent Orange was widely used as herbicide and jungle defoliant. It has been linked to a wide range of cancers and other diseases, caused by the highly toxic dioxin contaminant TCDD. "TCDD is among the most carcinogenic compounds ever to undergo widespread use in the environment," according to Dr. Clemens and coauthors. Veterans Affairs recognizes and provides benefits for certain cancers and health problems associated with prior dioxin exposure during military service, however skin cancer is currently not one of them.
The researchers analyzed medical records of 100 consecutive men who enrolled in the Agent Orange registry at the Veterans Affairs Hospital of Washington, DC, between August 2009 and January 2010. Exposure to TCDD consisted of living or working in contaminated areas for 56 percent of veterans, actively spraying Agent Orange in 30 percent, and traveling in contaminated areas for 14 percent. The study was limited to men with lighter skin types.
Non-Melanoma vs. Melanoma: The VA’s Use of Agent Orange in Viet Nam
March 31, 2015/in Agent Orange, Veterans /by Hill & Ponton P.A.
Over the years, there has been a great deal of documentation on how herbicides affect veterans – specifically Viet Nam veterans exposed to Agent Orange. Agent Orange was a chemical spray widely used during the Viet Nam War to clear and destroy foliage in the jungles. Although effective in its purpose, it has been linked to a wide range of cancers and other diseases due to the fact it contains dioxin – a well-known carcinogen. The impact Agent Orange has on the skin – the body’s largest organ – is the primary focus of this blog.
Back some years ago, between August 2009 and January 2010, a study was conducted amongst those veterans who enrolled in the Agent Orange Registry at the Veterans Affairs Hospital located in Washington, D.C. The study examined 100 men who worked in contaminated areas, were involved in the actual spraying of the agent, and those who traveled in the contaminated areas. Of the 100 men, all were known to have lighter or fair skin types. [Isn’t that ironic?]
Of the group tested, 43% was found to have a skin condition known as chloracne which has been proven to be caused by dioxins – as previously stated; a well-know carcinogen. Some of the other findings from the study included:
• 51% of the veterans having a non-melanoma, invasive skin cancer (still skin cancer);
• 73% represented veterans having participated in spraying Agent Orange resulting in the highest risk of skin cancer, and lastly;
• men with the lightest skin type and eyes also having a much higher risk of contracting non-melanoma skin cancer.
The good news is that there was no increased risk of the most dangerous type of skin cancer, malignant melanoma. Although a deadly form of cancer, the study did not document any differences between those males of similar age exposed to Agent Orange as compared to the general population. With that said, I do want to stress that this study took place five (5) years ago in 2010. Additionally, the study sample was extremely limited in both size and population.
Obviously, further studies are warranted to accurately decipher the impact of Agent Orange exposure as it relates to melanoma and non-melanoma types of cancer. [Not from any war-related contaminants, but via personal experience with malignant melanoma and its ramifications, I cannot express my adamancy of further research in this area.] Fortunately, this is exactly what is happening. Maybe not fast enough, though, since now four decades after the Viet Nam war ended, we are seeing an increase in the rates of non-melanoma skin cancer caused by this potent jungle defoliant. How could we not see such increases and possibly worse ailments — .these men and women were exposed to gallons upon gallons of this cancerous pesticide. Granted, the government’s reasoning was to destroy and remove the forestry that was concealing the enemy by destroying the crops. That it surely did. But today, we know that there were over 1.5 million Americans serving in Viet Nam during that time when the use of Agent Orange was most intense. Was this the best alternative? Our men and women may have survived the war zone, but now are battling a new war back at home!
Back in the 70’s, veterans returning from war began to report a number of ailments that included skin rashes that seemed “minor” in nature. In having discussions with my husband and his fellow Viet Nam veterans, they often referred to this condition as “jungle rot”. [This is a discussion for a future blog.] Today, it is quite common to hear of the skin condition, chloracne, which was observed in 43% of the veterans who were part of the study referred to above – much more than just a “minor” ailment..
The researchers acknowledge that flaws existed in their study and that more extensive research to include a control group is necessary to obtain more accurate results. The relative risks within this population most definitely warrant further studies in an effort to support our veterans and provide the care they earned and truly deserve. Let’s work together to make sure this happens for our veterans and those currently serving our country – the United States of America.

Thank God for our sisters and brothers in the military! -- jjames

I HOPE THIS HELPED OTHER VETS AND FAMILY MEMBERS.

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jjames,
Excellent article. I'm Veteran who spent three tours in Vietnam. At 82 the effects of Agent Orange proceeds though out my body. After surgery to remove squamous skin cancer to the VA want further blood testing to determine my MGUS blood numbers and if those number indicate other medical problems. After 48 years and over 400,000 dead Vietnamese our government is looking at those of us who spread the toxin. In reality it's to later for most of us.

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@kpuckett1

jjames,
Excellent article. I'm Veteran who spent three tours in Vietnam. At 82 the effects of Agent Orange proceeds though out my body. After surgery to remove squamous skin cancer to the VA want further blood testing to determine my MGUS blood numbers and if those number indicate other medical problems. After 48 years and over 400,000 dead Vietnamese our government is looking at those of us who spread the toxin. In reality it's to later for most of us.

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Hello- this is john south, I’ve been dealing with agent orange since 2011- I was diagnosed with agent orange heart disease and restrictive lung disease- my right lung has about 45- 50 % capabilities. I was diagnosed with Parkinson’s ( agent orange in 2011). I’ve had two heart attacks caused from the chemicals- my doctors at Mayo has been great and the new medications is really helping.

Can I ask about your skin cancer- did you get a disability for that- my wife is retired Army also- she was a nurse in Viet Nam ( in the field hospitals-which is just a tent at best) they received soldiers right from the battle field- the nurses said they were soaped with the chemicals at times. My wife has had-22 skin cancers on her right side- 3 of them were deadly(removed squamous cell cancer). She cut off uniforms with her right hand and they didn’t wear gloves in the field -it’s too sticky. God Bless you my friend and I hope you have some good days. John

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Ken Here, VSO and disabled Army Vet. My application for disability for Skin Cancer is pending. In August I had a local dermatologist remove a large mole which they diagnosis as Squamous cell cancer. In review recent VA blood disorders related to Agent Orange I discovered that the VA is considering that several cancers for a 10% rating. Of course, most will have to be reviewed. It's amazing to me that after 45 years the VA is still finding more diseases associated with Agent Orange and these latest may be listed as Secondary Conditions.

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is anything being done about gulf war veterans and the multi issues we face

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@magume

is anything being done about gulf war veterans and the multi issues we face

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Hello @magume, Welcome to Connect. There is some information on the VA's website that you might find helpful. It includes a link to a Gulf War Registry Health Exam under the VA benefits section.
--- Gulf War Veterans’ Medically Unexplained Illnesses:
https://www.publichealth.va.gov/exposures/gulfwar/medically-unexplained-illness.asp.
Do you mind sharing what health issues you are facing?

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@johnbishop

Hello @magume, Welcome to Connect. There is some information on the VA's website that you might find helpful. It includes a link to a Gulf War Registry Health Exam under the VA benefits section.
--- Gulf War Veterans’ Medically Unexplained Illnesses:
https://www.publichealth.va.gov/exposures/gulfwar/medically-unexplained-illness.asp.
Do you mind sharing what health issues you are facing?

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magume here, bronchitis, fibromyalgia, COPD, neuropathy hands and feet, residual's cold
weather injuries, photosensitivity's, neck and back trauma, osteo both knees, sinusitis, TMJ,
white matter brain disease, pacemaker, GERD, hiatal hernia, head injury military vehicle,
severe rashes 80% body, kidney stone large, vision issues, chronic fatigue syndrome, IBS,
GALLBLADDER REMOVAL, CYST FEET REMOVAL, Hydrocele TESTICLE REMOVAL,
chronic severe headaches, cyst with hole left leg. nerve damage right arm and hand, both
elbows synovitis, chronic severe tinnitus with hearing loss, posttraumatic combat, TBI,
all verified by over 100 private and VA doctors. SINCE 1992 AFTER GULF WAR.

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Yes. I also want to let everyone know that we used other stuff besides Agent Orange and let you know that one of these is Agent Blue which was used in Nam. There is not much research on what problems is associated with it. I have lots of skin cancers and I believe that that is caused by Agent Blue.

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@jimmyray

Yes. I also want to let everyone know that we used other stuff besides Agent Orange and let you know that one of these is Agent Blue which was used in Nam. There is not much research on what problems is associated with it. I have lots of skin cancers and I believe that that is caused by Agent Blue.

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Welcome @jimmyray, Sorry to hear you were also affected by a chemical agent used in Vietnam. You are right that there does not seem to be a lot of research on the problems associated with it. I did find a couple of articles that you may have already seen.

--- Three Primary Cancers in a Veteran With Agent Orange and Agent Blue Exposures: https://www.mdedge.com/fedprac/article/244411/oncology/three-primary-cancers-veteran-agent-orange-and-agent-blue-exposures
--- Agent Blue - The VVA Veteran: https://vvaveteran.org/35-3/35-3_agentblue.html
--- 3 SELECTED CHEMICALS USED DURING THE VIETNAM WAR: https://www.ncbi.nlm.nih.gov/books/NBK209597/.

Have you had any problems with the VA getting treatments?

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