C. diff, SIBO and chronic nausea

Posted by jillannw @jillannw, Dec 25, 2018

I started 8 months ago with either food poisoning or a stomach flu. I have never recovered. I have had every test done and continue to suffer from nausea everyday. In the middle of this I was diagnosed with and treated for c-diff twice but because I didn’t have the classic symptoms the drs at Mayo thought they were false positives. I also was diagnosed and treated for SIBO twice. The nausea everyday which is where this all started never went away. Has anyone had this and come up with a solution?

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Have you tried olanzapine? It is off-label to treat nausea, but it helped me. The Relief Band was minimally helpful, but some seem to get lots of relief from it.

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Do you have low sodium?

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Profile picture for suzzee3 @suzzee3

You can get D- Mannose with Cranberry at a health food store or order it online. I used to get UTI,s all the time from a weak immune system. Read about it. Keeps the UTI,s away and it's all natural. Hope this can help someone

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will try thanks

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Profile picture for clutch @clutch

Have you tried olanzapine? It is off-label to treat nausea, but it helped me. The Relief Band was minimally helpful, but some seem to get lots of relief from it.

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thanks

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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I still highly recommend the phenergan, which I take each day. The side effects, at least for me, are minimal.

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Profile picture for frances007 @frances007

Hello.
Yes, I take phenergan regularly, often every 6 hours as needed. While I have been prescribed other drugs for nausea such as Zofran and Reglan, these 2 drugs come with unpleasant side effects, and my doctor did advise me that Reglan has been known to cause neurological damage.
I take phenergan because of a liver disease. My pancreatic and liver ducts are dilated. Nausea is a frequent side effect of this problem.
As a side bar, I too get frequent UTI's and the antibiotics are hard on my stomach. Taking a probiotic along with the antibiotic has proved helpful. But, I do know that frequent use of antibiotics can create long term problems with one's stomach. I am still recovering from my last course of antibiotics that were given 2 months ago. It is not unusual for this to happen.
I am so sorry about your mother, and I hope she is feeling better soon. Check out some probiotics for her.
I wish you both well.

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Have you considered cannabis for your nausea? It works wonders for cancer patients.

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Yes, I have and it is very helpful, but costly. However, I may reconsider after my upcoming appointment with the hepatologist because I am concerned about all of the medications I take that may be having an effect on my liver. In fact, I just received a new prescription for migraines, Nutrec, and while it is a miracle drug, my pharmacist cautioned me about the fact that there is a warning on the literature that says not to use if you have a liver disease, which I have. But, one only gets 8 tablets a month, and I doubt I will use all of them in 30 days.

Thanks for the information

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Profile picture for janethmc @janethmc

My mom is now 84 and has been experiencing chronic nausea for 6 yrs that use to be seasonal in Alabama (Feb - Oct), but now year round. She has recently started taking Imipromene to reduce the sensitivity of the gut which takes several weeks to start working, but about the time it seemed to be working she had a bad UTI and of course a round of antibiotics. Her nausea during the UTI and antibiotics was high level and around the clock coupled with anxiety and lack of sleep. She is taking Nexium and now Phenergen (vs Reglan which stopped working after 2 months). Her gut seems more sensitive so we are trying to give her foods with probiotics and prebiotics to build the healthy bacteria again. Phenergan is helping her sleep at night better, but unstable due to dizziness. We are not sure what to do and her gastroenterologist seems puzzled. We are also going to try the ReliefBand and praying that works for her! Any suggestions of a great doctor in Alabama or near?

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Of course I have.

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Was taking dexilant 60 mg once a day and had nausea at very high level about 20% of the day. Now taking dexilant 30 mg twice a day and have nausea at a low level about 80% of the day. In essence, I have less nausea now for a longer part of the day. Have GERD and gastritis. Yes, I know it is confusing but any ideas how I can find some balance? It is like I now have low level nausea most of the day. Thanks in advance for your help.

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