Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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teb | @teb | Feb 23, 2023

In reply to @leeosteo "teb, are you in the northeast?" + (show)

originally from NY, now living in CA. You?
(which gives me an idea...why not post the question for doc recommendation here in Orange County, Ca!)

malkahsheva | @malkahsheva | Feb 24, 2023

Has anyone had any luck getting help with the payment for Evenity? I contacted the manufacturer and was told I am not eligible for help with the copay since I am on Medicare. Medicare pays 80% of the drug cost and I am responsible for 20% of the drug cost or $400 a month. Any suggestions would really be helpful. Thank you to everyone

bruceandruth1970 | @bruceandruth1970 | Feb 24, 2023

In reply to @bettylb "Has anyone had experience having to pause their Evenity for 1-4 months for medical or dental..." + (show)

I had one injection of Evenity before stopping to have a dental implant.

bettylb | @bettylb | Feb 24, 2023

Can you tell me how long you were off of Evenity from the time you stopped to the time you started back up again?

bruceandruth1970 | @bruceandruth1970 | Feb 25, 2023

In reply to @bettylb "Can you tell me how long you were off of Evenity from the time you stopped..." + (show)

I had my one injection in June 2023 and have not started back yet. I have the final appointment with the oral surgeon in April.

leeosteo | @leeosteo | Feb 25, 2023

In reply to @teb "originally from NY, now living in CA. You? (which gives me an idea...why not post the..." + (show)

In CT. Great idea posting here for Dr recommendations.

leeosteo | @leeosteo | Feb 25, 2023

In reply to @teb "originally from NY, now living in CA. You? (which gives me an idea...why not post the..." + (show)

Teb, you gave me an idea. Where in NY were you from? I'm in Fairfield County CT, borderline Litchfield County CT. If you were close on the NY /CT border I'd be interested in the Dr you used.

bettylb | @bettylb | Feb 25, 2023

In reply to @bruceandruth1970 "I had my one injection in June 2023 and have not started back yet. I have..." + (show)

June of 2022?

ladydiscdy | @ladydiscdy | Feb 25, 2023

I have taken Evenity; I had only 3 of the 12 doses because I had some side effects that had not been listed yet. My doctor took the initiative and called the manufacturer and was advised that maybe I wasn’t a good candidate. I have transitioned to Reclast. Check your insurance with Evenity can be pricey if you don’t have good coverage. The side effects I had were just recently reported; I chose not to be an experimental subject.

teb | @teb | Feb 25, 2023

In reply to @leeosteo "Teb, you gave me an idea. Where in NY were you from? I'm in Fairfield County..." + (show)

I did not have osteo when I lived in NY/NJ so unfortunately, I have no docs to recommend. Hopefully someone will come along that can recommend someone good for you.