BIG THREE FOR MAC A PROBLEM?

Posted by ritapearl @ritapearl, Feb 23, 2023

I was on the "Big Three for MAC and it made me sicker than the disease itself.The side effects were terrible. So I'm doing airway clearance but the MAC is still there then my pulmonologist told me about a trial for patients with MAC who are not responding to standard treatment.They are using a new drug epetaborole.I'm looking into it at NTMNJ@njms.rutgers.edu. The website can be found at
http://www.macro2study.com/macro

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dltorres | @dltorres | Feb 24, 2023

Thank you so much for sharing Rita! So glad there may be another treatment choice for MAC.

ritapearl | @ritapearl | Feb 24, 2023

The correct website is
http://www.macro2study.com/
macro2

BlueSplashGirl/ Carolyn | @bluesplashgirl | Feb 25, 2023

I went off the Big 3 in November due to sickness and ototoxicity from azithromycin. They just weren’t working and I decided to end my relationship with them. I also said no to Arikayce which also can make you deaf. My scans have been good so I will continue on with my dry salt inhaler and rage against the dark! Thanks for the link. I will read it and see what side effects there are. Thank you!