← Return to Grover's Disease: What works to help find relief?
DiscussionGrover's Disease: What works to help find relief?
Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)Comment receiving replies
Replies to "Got GD around New Years 2023. Broke out virtually overnight. Suffered for about 6 weeks with..."
I'm glad steroids worked for you; they did nothing for me.
Give your papule scars time, yes, they will go away. In my case it took over a year for them to completely heal. It took longer than that to not have pressure hurt my back and a massage would feel good today.
Cilantro did the trick for me, not one other treatment worked. After two years in remission, I started getting a few itchy, stinging papules starting to appear on front torso and then the back torso. I've been back to my blended cilantro. I did it daily for 2 weeks and now several times a week and have healed with no new erupted papules, however if I press hard on my skin on my upper back, I can feel a few little bumps under the skin. Previously all my breakouts had thousands of these little under the skin bumps. After my 2 years in remission my skin felt normal again. I was thinking I was cured, but now face the reality that this is a chronic disease and am vigilant and appreciate my good health today and take advantage of every blessed day without this debilitating disease.
I had a similar experience except that my GD began in August 2022. I began thinking it was an allergy and consulted an allergist, who prescribed a quadruple dose of Zyrtec. It did absolutely nothing, couldn't even tell that I was taking it. I saw a dermatologist who diagnosed Grover's and prescribed Triamcinolone Acetonide Ointment which at first helped with the itching but became less and less effective. I suffered for over five months using various OTC meds for the unrelenting itch: Biofreeze, Sarna, Witch Hazel, aloe/menthol/camphor concoctions, etc. Finally, I saw a second dermatologist. He prescribed the two-week diminishing dose of Prednisone as well as a double dose of Zyrtec. He explained that the Prednisone should "reset" my immune response and that the Zyrtec might take over after two weeks. The itching stopped almost immediately. My two weeks on Prednisone ended a week ago, and the itch has not returned. (I experienced some unpleasant side effects from the Zyrtec, however, and had to replace it with Allegra.) So far so good. Note that this does NOT involve long-term use of Prednisone which is, indeed, dangerous.
Have never heard anything good about Prednizone as a permanent treatment. Get on the Facebook Grover's Disease page and read about it. Steroids can be dangerous long term. I've never used it. I hope it worked for you. I have had GD for a very long time and the only thing that worked for a long time was Gabapentin, which worked for 13 years and then, just quit working.