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← Return to New Territory: CM-AVM2 and living donor liver transplant
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New Territory: CM-AVM2 and living donor liver transplant
Caregivers | Last Active: Feb 21, 2023 | Replies (4)Comment receiving replies
@jimbo9119, I can imagine this is very overwhelming. To be diagnosed with or caring for someone a serious illness is tough and we often rely on our doctors and clinical team to help guide us. But when the illness also has the doctors baffled, you must feel like a sailboat without a rudder.
To help connect you with others, I've expanded the title of this discussion and also added it to the Transplants support group here: https://connect.mayoclinic.org/group/transplants/
Jimbo, are you going to Mayo Clinic for transplant evaluation? Does your husband have a living donor?
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Thank you for expanding and sharing this for me. Yes, we will be going to Mayo Clinic in Rochester as soon as they can schedule all the appointments for us. We do have offers from two family members to be donors but that's as far as it has gone so far. We're essentially taking one day at a time so as not to make this what defines our everyday life. Hopefully that day will come soon enough.