Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Does the Vagus Nerve Stimulator work for GI pain? Specifically upper abdominal?

I’m not sure if it would or not. I have lower left GI pain and then just generalized “all over” pain and it helps with that. I guess it would depend why you’re having the GI pain. Sorry I don’t have a better answer for you, and sorry you’re having to deal with the pain 😔.

Robin, May I ask if you found this clinic helpful?

I had trigeminal neuralgia and took Carbmezine. This alleviated the shooting pain in face.

My neurologist is bumping my Gabapentin slowly to 900mg a day to see if it will help with my multiple symptoms. I am up to 600mg a day, and have not noticed any improvements.

Robin, I’ve had Long Covid since February of 2021. Physical therapy helped my difficulty walking, but I had to be very careful not to overdo it. Here are the things which have helped my fatigue and brain fog: anti-inflammatory diet including stopping coffee, estrogen and testosterone therapy (I’m 69), high -dose antihistamines daily including famotidine, ashwaganda, a berry and vitamin supplement called Zeal, mixed mushroom powder supplement which has anti-inflammatory effects. I have to take a mixture of herbs, antihistamines, and other supplements to be able to sleep, as the Long Covid has caused terrible insomnia. And of course rest. If I overdo it physically or mentally it takes about 3 weeks of rest at least to recover my energy level. If I had to pick one thing which has helped the brain fog and fatigue the most, besides adequate sleep, it’s the estrogen and testosterone oddly enough. I’ve been fortunate to have a PCP who has Long Covid even worse than me and is not afraid of a holistic health approach.

Hello, a friend gave me this article about an ongoing UCLA study that focuses on covid/long covid neurological impacts and also the neurological impact on the rest of the body, worth a read: https://www.scientificamerican.com/article/long-covid-now-looks-like-a-neurological-disease-helping-doctors-to-focus-treatments/
Be well, Greg

This is the best article Ive seen. As a person who ran multi specialty/ pulmonary/sleep disorder practices over 20 yrs, describes the helpful journey a healthcare professional can attain, yet my healthcare system relies solely on PCP whose response is as so many “We just dont know”. Had to “request”consult visits to neurologist with brain mri who shared covid created brain lesions/growth but “I’ll be fine” nothing further to do and future surgery needed can be many years ahead ?, Pulmonologist- I had to “request”nebulizer corticosteroid be prescribed after ER month earlier elevated D dimer /tachycardia/high blood pressure/arrhythmia/ct lungs nodules ground glass opacities with severe tissue suspected vessel damage with follow up pulmonary function test again not capable of detecting central nervous issues explained, Speech Therapist referred for breathing difficultIes but only trained to assist with “brain fog” cognitive issues? then acknowledged suspected central nervous causes not her area so care stopped, Cardiologist never saw but holter monitor and echocardiogram ordered by other doctors who happened to see me/read history in pulmonary rehab clinic-there to determine activity creating symptoms- but care rescinded again didnt “qualify” under respiratory test instead of central nervous cause? 10 months later finally phone appt with one of only 10 post covid doctors who understood many symptoms/documented POTS/ ordered sleep study verifying suspected central apnea with O2 88% but no CPAP or oxygen covered under dme formulary and unable to work and no disability income over year to afford purchase☹️/debilitating effect on life but could do no follow up per lack of doctor resources and deferred back to PCP who states worse case seen but can do nothing? My hope this articles type of clinical info is shared throughout all healthcare systems and minimum mandatory treatment protocols created for all. Hopeful healing journeys to everyone!🌈

Some of the same issues here, it was like someone turned a switch on and my body went haywire!! Was traveling abroad early 2022 and it was mandated to have Covid Booster to reenter the US.
Returned from vacation and still ended up with Covid.

Post the booster and during Covid I began with gut issues. I now have food intolerances I have never had before and Gastro doc thinks IBS. Then started the buzzing sensations, tremors, twitches, muscle pain, balance and coordination issues and brain fog. I have been to a Rheumatologist, Gastroenterologist, Neurologist, and several GP's. I have had countless MRI's, ultrasounds, EMG, bloodwork and medications with limited answers. I now also have issues with arthritis in my whole spine, hands and arms. Have been dealing with it ever since with no explanation .
The Neurologist labled all this Fibromyalgia. I guess he had to come up with something! Rheumatologist says it not Fibro and called it Osteoarthritis and and was unable to offer explanation why I have such bad arthritis pain and issues in the spine all of a sudden with no injuries to my spine in the past or other problems. Furthermore, I recently quit my job due to ongoing issues. I had a very active lifestyle before all this. Now, I can only tolerate walking and have started yoga which helped some. Gastro doc placed me on an IBS elimination diet...see where that leads. Have not started the Gabapentin that the Neurologist gave me, wondering if it would even help? Longing for answers and help. My life changed overnight post Covid.

You might try palmitoylethanolamide (PEA) dietary supplement. There is good evidence that it helps with neuroinflammation and it has a good safety record. It was recommended to our Facebook group for brain fog by a famous Danish physician. I have been taking it for nerve damage due to the Covid vaccines, and believe it has helped my recovery.