← Return to Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

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@greg1234

Hello, a friend gave me this article about an ongoing UCLA study that focuses on covid/long covid neurological impacts and also the neurological impact on the rest of the body, worth a read: https://www.scientificamerican.com/article/long-covid-now-looks-like-a-neurological-disease-helping-doctors-to-focus-treatments/
Be well, Greg

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Replies to "Hello, a friend gave me this article about an ongoing UCLA study that focuses on covid/long..."

This is the best article Ive seen. As a person who ran multi specialty/ pulmonary/sleep disorder practices over 20 yrs, describes the helpful journey a healthcare professional can attain, yet my healthcare system relies solely on PCP whose response is as so many “We just dont know”. Had to “request”consult visits to neurologist with brain mri who shared covid created brain lesions/growth but “I’ll be fine” nothing further to do and future surgery needed can be many years ahead ?, Pulmonologist- I had to “request”nebulizer corticosteroid be prescribed after ER month earlier elevated D dimer /tachycardia/high blood pressure/arrhythmia/ct lungs nodules ground glass opacities with severe tissue suspected vessel damage with follow up pulmonary function test again not capable of detecting central nervous issues explained, Speech Therapist referred for breathing difficultIes but only trained to assist with “brain fog” cognitive issues? then acknowledged suspected central nervous causes not her area so care stopped, Cardiologist never saw but holter monitor and echocardiogram ordered by other doctors who happened to see me/read history in pulmonary rehab clinic-there to determine activity creating symptoms- but care rescinded again didnt “qualify” under respiratory test instead of central nervous cause? 10 months later finally phone appt with one of only 10 post covid doctors who understood many symptoms/documented POTS/ ordered sleep study verifying suspected central apnea with O2 88% but no CPAP or oxygen covered under dme formulary and unable to work and no disability income over year to afford purchase☹️/debilitating effect on life but could do no follow up per lack of doctor resources and deferred back to PCP who states worse case seen but can do nothing? My hope this articles type of clinical info is shared throughout all healthcare systems and minimum mandatory treatment protocols created for all. Hopeful healing journeys to everyone!🌈