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Lung transplant wait list

Lung Health | Last Active: Feb 24, 2023 | Replies (15)

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@sbt19

Hi Shari. My husband had Covid in February 2022 and has pulmonary fibrosis in the bottom third of both lungs as a result of Covid pneumonia. How much of your lungs are scarred and is the fibrosis progressive? They suggested lung transplant to my husband, but he is 69 with diabetes and didn’t think he would qualify as well as not thinking he could tolerate the surgery. I am thinking maybe we made the wrong decision. After a year, he is no better (but no worse either). However, he does not have much of a life now. He gets some better with inpatient pulmonary rehab, but quickly deconditions as soon as he gets home (have done this 3 times). Depression is a big problem now.

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Replies to "Hi Shari. My husband had Covid in February 2022 and has pulmonary fibrosis in the bottom..."

Hi sb19. Since this was due to Covid they do not know if the PF will continue to progress. I do have pneumonia all the time. I keep getting sick at the drop of a hat, and I rarely go places that aren’t a doctor’s office or hospital. The tests show scarring all throughout. There is more white than black on the scans. I had cancer 5 months before contracting Covid, so many people thought I was ineligible for 5 years from July 2021. Mayo Rochester accepted to see me after I was one year post cancer, and I did 2 weeks of testing and a check off list and here I am. I would still check into it even with the diabetes. I know people in my FB support group zoom meetings that have it and were transplanted. They were completely decommissioned and about to pass without the DLT. Checking into it won’t hurt. You can always say no at any time in the process. Best of luck and health!