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Waldenstrom macroglobulinemia: What to expect during watch & wait?

Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)
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@mxx

I have just been diagnosed with WM and am on a watch and wait as well. I've been referred to have a pet scan by my hematologist. I do not have symptoms now. It is a scary feeling not knowing what to expect. I'll be following this group to keep in touch with what others are experiencing. I know that diet has not much influence on this diagnosis but am interested to hear how others have managed or altered their diets, if at all. Thanks!

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Replies to "I have just been diagnosed with WM and am on a watch and wait as well...."
ejrquast | @ejrquast | Feb 17, 2023

Thank you for reaching out for support. WM is a very rare blood cancer. While it can be an overwhelming diagnosis, there are treatment options and hope. I was diagnosed with Waldenstrom’s Macroglobulinemia in 2014 and was immediately referred to a WM specialist at Mayo to coordinate my care with my Mayo Rochester specialist.
I contacted the International Waldenstrom’s Macroglobulinemia Foundation, I.W.M.F., for support and amazing educational resources. If you go to the following website: https://iwmf.com/join-the-iwmf/#
you can then click on the JOIN button. You will receive a new member packet with invaluable WM information.

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