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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
Hi,
A friend has been diagnosed with polycythaemia vera very recently and is in a bit of a shock about it. They want to know why they're feeling dizzy when they look up?
They aren't starting treatment for a few weeks.
I want to be as helpful and knowledgeable as possible to support them. Any advice is appreciated!
Replies to "Hi, A friend has been diagnosed with polycythaemia vera very recently and is in a bit..."
My husband recently diagnosed too. His symptom was big toe pain. Have just done phlebotomy so far. We’re still processing what this all means. I was able to get him into an MPN specialist in March. I really like these resource websites (including this mayo site) -
https://www.patientpower.info/myeloproliferative-neoplasms
https://www.pvreporter.com
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Welcome, @brilsmla. I moved your message to this existing discussion:
- Polycythemia Vera: Just been diagnosed: https://connect.mayoclinic.org/discussion/polycythemia-vera-1/
I did this so you can read the helpful messages posted and connect easily with members like @julesc @dhcarter @lorrainegobeil @vanna1031 @albertedward and many others, who can help answer your questions.
Some people with PV might develop vague symptoms such as headache, dizziness, fatigue and blurred vision.
To help your friend, you may appreciate the sections at the end of this article from Mayo Clinic about PV: https://www.mayoclinic.org/diseases-conditions/polycythemia-vera/diagnosis-treatment/drc-20355855
It include sections like:
- Lifestyle and home remedies
- Preparing for medical appointments