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Body vibrations --> insomnia??
1. In October last year I started experiencing something weird that I found discussed in this forum:
- Body vibrations when falling asleep https://connect.mayoclinic.org/discussion/body-vibrations
Further research did not reveal anything. My PCP and a UCSF neurologist had nothing to say.
2. Then I had an onset of insomnia: for the last two weeks I have not been able to fall asleep without at least 7.5mg of Temazepam, and even with that I would get only 3-5 hours of sleep with wakeups. My PCP recommended Mirtazapin for its sedative effect, and before trying it I opened a discussion here:
- Temazepam to Mirtazapin https://connect.mayoclinic.org/discussion/temazepam-to-mirtazepin/
I did not make a 1-2 connection until last night.
Usually I am unaware of the exact point of falling asleep -- that's how it happens. But last night, while trying to fall asleep without Temazepam I realized that because the vibrations mark exactly that point and are rather an unpleasant sensation, they give a mental jolt that stops the process -- hence insomnia.
If I am right, eliminating the vibrations is the only solutions but since nobody knows about them...
Anybody experienced this? Thoughts, ideas?
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Yes, I've experienced this as well, not being able to sleep due to the sensations. Its kind of a snowball effect, the more it happens the less I can sleep but the less I sleep the more it happens. I highly recommend getting a metabolic panel and ensuring you are keeping up with vitamins. The more regular I am with my iron, vitamin D and B12 the less this sensation happens. Even if you are barely within normal range, it might be your body needs you to be in the middle of normal range and will operate better when you are. I do not take any medication to assist with sleeping.
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2 ReactionsHi @sgeneris, I love how you're making connections reading various discussions in different areas on Mayo Clinic Connect.
You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. I inserted the links to the discussions you mentioned in your post.
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2 ReactionsScience education and background will do that to you.
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1 ReactionI just had a panel: I had Mg deficiency which induced twitches so I am taking a supplement and they're mostly gone. Ditto for D: I had to take a high doze supplement and now a daily 1000 -- it's normal now. There were no flags, but they did not do Iron and B12 -- I'll ask next time.
Did you supplement Iron and D and the vibrations went away?
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1 ReactionI can't say they went away entirely as I feel the sensation from time to time, maybe a few times a week. But not daily and never to the extent of being kept awake anymore. I also eliminated substances that suppress my central nervous system, like alcohol as it seems to also aggravate it.
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2 ReactionsMaybe look into eating a low histamine diet. If you notice improvement, look into MCAS.
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2 ReactionsI’ve had vibrations that interfere with my sleep since 1987, two years after I became ill with what has become known as ME/CFS, or myalgic encephalomyelitis/ chronic fatigue syndrome. I take a very small dose of clonazepam for it. I vibrate all the time; it’s most interfering when I try to sleep.
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2 ReactionsWelcome @diannearizona, That seems like long time to be dealing with having your sleep interrupted. You mentioned ME/CFS. You might want to connect with other members here:
--- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments:
https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/.
Do you think the vibrations are associated with ME/CFS?
Yes, they are connected. The worse the other symptoms of ME/CFS, the worse the vibrations. When I get dangerously low on my essential ME/CFS medications, the vibrations are like a little jackhammer in my chest and actually become painful. Thank you for the link.
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2 ReactionsWas there a specific deficiency/cause identified which, when eliminated, made them better?
This is 3rd week that I cannot fall asleep without at least 7.5mg Temazepam every night and even though it's the lowest doze, it's not advisable longer. It already shows signs of ineffectiveness, I get very tired and yet I cannot sleep. I don't want to go higher doze.
I did extensive research on all med options . My PCP recommended Mirtazapin, but I have some questions/concerns. Problem is my access to him, let alone a specialist, is limited and slow. This is scary and exacerbates my condition.
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