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Has anyone experienced internal vibrations?

Brain & Nervous System | Last Active: 2 days ago | Replies (888)

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@cez1981

Hello,
Im 40 years old and been living with these issues for several years now becoming worse with time.
Currently is call it a flare up but I get severe internal vibrations through out my entire body. The vibrations do not stop I get severe muscle spasms in legs, feet(feels like toes are going to pry foot apart) and hands that often cause me to drop things or fall. I get muscle jerks which feel very different more like a rubber band snap but my muscle pulling inward ( abdomen, arms and legs). I have joint pain in hips, wrist, elbos and feet. I cant sleep constantly in pain or movement. Im beyond fatigued unsure from sleep loss or pain. My brain is a mess with migraines and liss of attention and retention of memory.
2017 I had Valley Fever pretty bad and it was dormants. My vibrations and pain started in 2018 and infectious disease docs at VA hospital declared not related. It took till 2021 for VA to get me into neurologist that found some brain lesionsin frontal left lobe and labs showing I had internal shingles. I was medicated and felt great for about 6 months then back again while I was pregnant and increased with issues and pain after pregnancy. I currently am waiting to see a diff neurologist but appointments keep getting pushed back. I am on duloxetine60mg for depression and hopes would help pain and vibrations. It seems that i will get about 2 month gaps when feel pretty good then one day it all flares up again for months. It calms as fast as it comes on but been this way for several years. Only thing that mildly help is very and I mean very hot baths. Any insight or valudation Im not crazy and what Im going through would be great!

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Replies to "Hello, Im 40 years old and been living with these issues for several years now becoming..."

Hi. I am sorry you are faced with this and no answers to date.
I did find your post interesting. I have had an internal vibration that wakes me from my sleep only since March 2021. I feel mine in my thoracic area. However, I too had INTERNAL shingles in oct of 2020 continued suppression therapy until dec of 2020. I have experience 2 more upticks of internal shingles suspected on my part then confirmed with IGM and IGg testing for shingles. My PC has recommend I see an neuroimmunologist to evaluated the reoccurrence of shingles. Could you be having a reoccurrence of shingles? Are the lesions suspect of MS? This was another diagnosis that my rheumatologist has ruled out autoimmune disease now with blood tests of your ANA tiger which is markers to evaluate inflammation in your body. I do experience hip and groin pain, fatigue, and lots of burning( working with a pelvic physical therapist right now) on left side only as well as left thoracic pain and pulling and nightly vibration. I would be interested to know if shingles is playing a part in this vibration. No muscle relaxer or gabapentin is a help. Valacyclovir to for suppression of shingles. Only antibiotic ciproflaxin and doxcycline has almost eliminated the burning pain in hips, lower back, groin but not the vibration in my thoracic. ( cipro made it worst in my hands at night thrust awake). In the middle of 14 day dose of doxicycline for overgrowth of ureaplasma which can spread beyond the pelvis I just found out. I hope they have checked your magnesium levels with muscle cramping too. Hope you get some answers. My sanity comes from the app “Insight timer” meditations, talks, music for sleep and calming the sympathetic nervous system. It’s got 195000 free mediations to try! Don’t give up!

Hi, I have those internal vibrations and it raises my blood pressure. It gives me bad headaches and I am going crazy, neurologist don't know what is but I have white matter brain disease that I found on MRI wish I could find a resolution because it 's very bad.

Hello @cez1981 and welcome to Mayo Clinic Connect. I saw you were looking to connect with other members on internal vibrations, so you will notice that I have moved your post into an existing discussion you can find here:
- Has anyone experienced internal vibrations?: https://connect.mayoclinic.org/discussion/internal-viberations/

It is great to see that @hope23 @khali and others have joined you already! I will let you all compare your experiences.