1. < Polymyalgia Rheumatica (PMR)

Anyone have experience with Low Dose Naltrexone instead of prednisone?

Posted by vfaye @vfaye, Nov 19, 2019

I have been diagnosed with PMR and can’t take Prednisone.
LDN has been suggested - it has been used off label for autoimmune disorders. Has anyone heard of this?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

suetex | @suetex | Feb 11, 2023
In reply to @sususi "Thanks again, I watched Dr Cohen talking about it on utube, he says it helps mood..." + (show)
@sususi

Thanks again, I watched Dr Cohen talking about it on utube, he says it helps mood as well as sleep and pain reduction. After reading your experience with it I would like to try it and feel sure it could help, I have not taken anything to stop the pain except boron which does help slightly, I’ve lost 20lb with battling pain, I’m quite thin now. Does LDN help the harsh morning pain?

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I don't think I can predict how it will help you, but I think it will help in ways that will surprise you. Give it some time when you do try because some ways it helps is measured in days and others take a couple of months. Your body has to heal itself but LDN seems to help balance your immune system.

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jfannarbor | @jfannarbor | Feb 11, 2023
In reply to @redboat "Is the LDN helping with your pain? How much?" + (show)
@redboat

Is the LDN helping with your pain? How much?

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I am interested too in LDN. Please let us know how you do on LDN. How much do you take a day? Any side effect"

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