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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)
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@colleenyoung

Hi Jules, good questions for @mumma and others living with PV like @kat101 @buckaroobanzai @mattymatilda @bohobruja @chadknudson @mikepv.

@julesc, are you finding that you are able to continue working and your regular activities or do you have to scale back?

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Replies to "Hi Jules, good questions for @mumma and others living with PV like @kat101 @buckaroobanzai @mattymatilda @bohobruja..."
julesc | @julesc | Feb 11, 2023

I don't have an official diagnosis as of yet, but I feel like I need to scale back. I haven't yet, but I realize I'm probably going to need to slow down a little.

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dhcarter | @dhcarter | Feb 12, 2023

Hello Jules, I was diagnosed with PV this past September. I am a high school science teacher and was also concerned about having to cut back on working. Since phlebotomies once a week for 10 weeks and taking Hydrea, my blood work is within normal standards and my energy levels are up. I have only one more year til retirement so I plan to hang in there. That being said, I do have a lot of sick days saved, so I will also take advantage of them when needed and treated myself. Be strong!

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