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<p>I have been diagnosed with chiari malformation and I have been having bad headaches for over a year now 24/7. I also have blurred vision that the doctors are not sure why.i am on my 3rd set of botox treatment and it hasnt done nothing. I am nit sure if it is the malformation causing my problems and the doctor is no help with that. Anyone having or has had the same problems? Needing a little advise about this. I cant keep having migraines every day.</p>
Replies to "I have been diagnosed with chiari malformation and I have been having bad headaches for over..."
I have Chiari, they say,but my headaches aren't that bad, it's the nerve damage that hurting so bad! I think it's my syringomyelia cause ing all the pain , but my doctor said it not get better after surgery he can't promise anything so what do I do please HELP? What do you think?
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Hi @mfann, welcome to Connect. My apologies for the delayed response. Somehow your message slipped by.
I can't imagine the stress and frustration while trying to find answers to your son's medical issues. I personally don't have experience with Chiari, but hope that you will find support and helpful suggestions from this group. The symptoms you mentioned don't appear to be typical symptoms of Chiari malformation according to NORD https://rarediseases.org/rare-diseases/chiari-malformations/ Might the symptoms be related to his heart condition or other medical issue?