Amalgamation of Research - Self-Treatment

Posted by blgilles @blgilles, Feb 8, 2023

Hi everyone,

I've been compiling research on this for quite a while now. Trying to figure this out as my case is severe (lost capability to walk, lost ability to control right leg below knee, both arms below shoulders, lost capability to urinate and defecate).

With self-treatment from the plan below I am able to walk again, urinate, and defecate again. My future is very shaky, as I have lost 69lbs, and I was very lean even then (all muscle; I'm 6'5" tall).

I'm sharing here because this treatment is helping even me - who the doctor who last saw me said "It's too late to help you."

So... for those who are not as badly impacted, this likely will help a TON.

And with that, the work-in-progress summary of my research. With this treatment I can use my legs and arms and fingers again, so I've restarted the research:
https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l2z8_SSgMN-XdM8Uk58Q/edit#
Thanks,
Brandon

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

christine8 | @christine8 | Feb 9, 2023

I am so sorry your long Covid struggle is so intense.
I truly appreciate the time, effort, energy this post took you and your wife to create. This is the most clear explanation of my long Covid issues that I have ever heard. This explains my intense analysis since Long Covid started, as well as many other symptoms that have put me on a long term medical leave from my job.
I will take time to sort through your extensive library of informative articles.
Again, thank you.
I wish you all the best as you work through your healing process.
Christine

Lucy | @welchllb | Feb 9, 2023

Thank you!! I have been looking at the Microclot theory for awhile. I'd be interested in a Mayo professional commenting on your research. It's amazing, and I will be doing more research of my own. I've had long Covid since August 2020, along with previous diagnoses of CFS and Fibromyalgia. I had shoulder surgery in November and am having more than the usual pain while going through rehab. Wonder if Post Covid, Fibro, microclotting could be factors in my long recovery. Thanks, again. Hoping you feel better soon.

blgilles | @blgilles | Feb 9, 2023

Yes, surgery usually will (re-)trigger it. And thanks for the kind words, all. I'm still here because of this (and can use my limbs again!). Which I'm stoked about. But more importantly both of my kids (2 and 4) were suffering. And now they're fully recovered. So whatever happens to me, I'm stoked to have figured out what I have. Some things are probably not fully figured out yet in the doc. But I think it should help a huge number of people to have a full recovery.

shellygp | @shellygp | Feb 9, 2023

Thank you Brandon! I was pretty bad for the first 6 months couldn’t take care of myself, lost 55 lb, couldn’t sleep more than an hour at a time, painful, twitching muscles, white / purple cold hands / feet…. Etc, etc. Without much help from my doctors, have done much of what you outlined and am much improved over the 13 months total… so far. But POTS and peripheral vision white flashes and tinnitus remain. And I’m still on a lot of medications (I’ve asked for) and supplements. Do you think the POTS, flashes, tinnitus will go away? Do you think we will be able to be “normal” without all these meds??
Thanks again,
Michelle

blgilles | @blgilles | Feb 9, 2023

Naturally they might. If you follow the Google doc, avoid carbs and histamine foods. Go on a full anti-histamine diet.

And consider the supplements recommended in the supplement section of the google doc... With those, yes, those will go away.

Does this link to the section work?
https://docs.google.com/document/d/1X3dNPgEuQ2j8x7w8OqLEDP7l2z8_SSgMN-XdM8Uk58Q/edit#bookmark=id.4g0y4kh98cd5
My POTS, vision flashes, and tinnitus are gone now. And they were severe. Some days I'd go completely blind for minutes at a time. Others were constant flashing.