1. < Post-COVID Recovery & COVID-19

How long have you had post-covid?

Posted by eyja @eyja, Jan 25, 2023

I´m hopin that my son and I recover soon. Of course. We´ve had it for six months now.
How long have you had it?
Would love to hear from those who are still as ill, as well as those that have started recovering and those who have recovered.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

beebee000 | @beebee000 | Feb 2, 2023
In reply to @mrwolf "March of 2021 with headaches, brain fog, tremors, insomnia and some SOB. They have all improved,..." + (show)
@mrwolf

March of 2021 with headaches, brain fog, tremors, insomnia and some SOB. They have all improved, but not gone. Took 4th Pfizer stab and now mild tinnitus. I was healthy, exercised, ate lean and supplemented with vitamins, minerals and amino acids. I still do, but have had to take it few notches down, since l don’t feel the same. I don’t believe in conspiracies, but l believe 100% this virus was man made and that it escape that Chinese lab, but l digress. I’ve stayed with positive attitude of changing what l can and deal with the rest.
I don’t think this will go away ever until we depart. This is not very positive, but l am a realist. Lastly, l stopped taking all sleeping and anxiety meds, since they didn’t make me any better. Doctors are treating symptoms not the cause of the problem.

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i think it's here to stay too, just like we have to deal with some sort of flu every year but i think this covid thing will be all year instead of seasonal..hoping i'm wrong, it's just what i think...i call it the Demon Virus...

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melaniego | @melaniego | Feb 2, 2023
In reply to @lynnryan "I got mild COVID in the very beginning, March 2020. LC symptoms developed 6/2020, all neurological..." + (show)
@lynnryan

I got mild COVID in the very beginning, March 2020. LC symptoms developed 6/2020, all neurological in nature: vision problems, light/sound sensitivity, tremors, muscle and joint pain, fatigue, light-headed/dizziness, nausea, migraines. Unfortunately my symptoms have never improved, and I haven’t been able to work since. Have been to multiple specialists, including Mayo. They have tried numerous medications and treatments to no avail. The one thing that did help is the 3 week Mayo Clinic Pain Rehab. It doesn’t fix you, but rather help you understand what is going on in your body, with tools and practices to help you live with it.
Good/Bad news is that I finally got approved for Social Security Disability last October. Happy to have finally been approved, but sad this illness changed my life so drastically.

I have heard that people who got LC in the beginning have the worst of it, since we got the full viral load and no vaccines, etc, had been developed. I pray you and your son have a solid recovery soon. 💗

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Congrats on getting disability. I was told I need to work another two years before I can apply again. I am a teacher/tutor, right handed with a right hand and right leg tremor. Writing is not fun.

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barbara9 | @barbara9 | Feb 3, 2023

I HAVE HAD POST COVID FOR. 7 MONTHS. NO RELIEF

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tchrart | @tchrart | Feb 3, 2023

Had Covid last week in October 2022. Took me about 3 1/2 months to feel normal again. Was very tired and needed to stop whatever I was doing.
I walked whenever I could and increased my distance. I believe that this helped in my recovery. My PCP was ok with what I was doing.
Good luck to you both.

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lynnryan | @lynnryan | Feb 3, 2023

So sorry to hear that! Did you have an attorney help you? After I got denied the first time, I got one, and it helped a lot. By law, they can only charge a flat fee, which would come out of any back pay. I believe it’s like $3-4k. Best of luck to you! ❤️‍🩹

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bereese | @bereese | Feb 3, 2023

Had covid in Dec 2019 and have been in long covid since Jan 2020...internal tremors have been 24/7 since summer of 2021 and though the fog has lifted somewhat the lack of sleep makes daily living a challenge.

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baci | @baci | Feb 5, 2023
In reply to @bettyjackson "3 yrs this March." + (show)
@bettyjackson

3 yrs this March.

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Going on 2 years. Like a roller coaster- start to get better and then regress. Warm weather has helped me. To anyone experiencing the LC roller coaster- keep fighting- we are all warriors and it takes alot of time, patience and self love/care. Its ok to feel like a defeated warrior sometimes- but every time you fall and get back up- you continue to be a strong, brave person- who is not defined by LC. This will pass. Sending hope out.

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glennathill | @glennathill | Feb 5, 2023

Since November 2020 slowly getting better

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fiddlesticks | @fiddlesticks | Feb 6, 2023
In reply to @bereese "Had covid in Dec 2019 and have been in long covid since Jan 2020...internal tremors have..." + (show)
@bereese

Had covid in Dec 2019 and have been in long covid since Jan 2020...internal tremors have been 24/7 since summer of 2021 and though the fog has lifted somewhat the lack of sleep makes daily living a challenge.

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Same here...Got Covid late Feb-early March 2020. Then had to have my gangrenous gall bladder removed April 1st. So, between recovery from that and covid LC symptoms, I'm not sure when LC set in but, here it is close to 3 years later and am still dealing with LC "normals" ...extreme fatigue, brain fog, complete exhaustion following a simple 20 minute walk...But the internal tremors are truly disturbing...frightening actually, as my wildly creative imagination visualizes the tremors as the covid virus nibbling at my central nervous system.

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bereese | @bereese | Feb 6, 2023
In reply to @fiddlesticks "Same here...Got Covid late Feb-early March 2020. Then had to have my gangrenous gall bladder removed..." + (show)
@fiddlesticks

Same here...Got Covid late Feb-early March 2020. Then had to have my gangrenous gall bladder removed April 1st. So, between recovery from that and covid LC symptoms, I'm not sure when LC set in but, here it is close to 3 years later and am still dealing with LC "normals" ...extreme fatigue, brain fog, complete exhaustion following a simple 20 minute walk...But the internal tremors are truly disturbing...frightening actually, as my wildly creative imagination visualizes the tremors as the covid virus nibbling at my central nervous system.

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I share so many of your symptoms! Scary to read that the lc vibration is damaging your organs...and the tremor is so constant is worrying...and my lc is messing with my thyroid, up and down with the dosage, but many have it worse, so hang in there and get some sleep!

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