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Primary cutaneous marginal zone B-cell lymphoma (PCMZL)
Blood Cancers & Disorders | Last Active: Feb 7, 2023 | Replies (2)Comment receiving replies
Welcome @georgie2, as you know primary cutaneous marginal zone B-cell lymphoma (PCMZL) is a low-grade malignant B-cell lymphoma and it is very rare. I'm so glad that the odd lesions on your skin were sent for further investigation to confirm your diagnosis.
Many patients are nervous about being put on watch and wait. I prefer to call it active surveillance because you are being monitored. Did this treatment approach make you nervous? What testing is done during follow-up?
Replies to "Welcome @georgie2, as you know primary cutaneous marginal zone B-cell lymphoma (PCMZL) is a low-grade malignant..."
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Quite the contrary, I am very relaxed about the wait & watch approach. I'm not in a crisis or anything & finding ways to manage status quo symptoms pretty well.
I don't really have any kinds of tests done on my followups for PCMZL, unless a need for one were to come up. Just routine bloodwork now and then. Mostly that's due to past history of AITP (longterm remission), then subsequently AIHA (also longterm remission).