Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
I was born with CMT [CHARCO MARIE TOOTH] .CMT is a progressive neuromuscular disease that damages the peripheral nerves,creating muscle atrophy, sensory loss and disability. CMT affects an astounding 3 million people of all ages worldwide. There is currently no cure for CMT. My legs and hands are severely affected. I wear braces on my feet and legs that helps with drop foot and enables me to stand for short time. The burning from the Neuropathy and the muscle spasms are of course worse at night or when the weather changes in any way.
Replies to "I was born with CMT [CHARCO MARIE TOOTH] .CMT is a progressive neuromuscular disease that damages..."
Connect
Hello @mhr31, Welcome to Connect. The weather affects my neuropathy also but I just have the numbness and some tingling. I know the burning pain and muscles spasms make it a lot worse. I know that you are not alone and hoping that you can find some answers that may provide some relief. There are a couple of discussions you might find helpful. One is an older discussion but I think still has members that are still active on Connect. Tagging them by typing their @ member name might be useful for asking questions.
-- CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD:
https://connect.mayoclinic.org/discussion/cmtcharcot-marie-tooth-disease-type-2-neurological-disorder-form-of-md/.
-- Neuropathy Pain at Night: What helps?: https://connect.mayoclinic.org/discussion/night-pain-2/.
The CMT Research Foundation has a series of videos you might find helpful if you have not already seen them or visited the website: https://cmtrf.org/video-series-with-research-experts/.
Have you found any home remedies or therapies that provide some relief for the worsening symptoms at night?