About to start Prolia: What's your experience?

Hi again @leeosteo, I hope you are well and happy this evening. You have presented a question for which I do not know the answer. It is a good question. When you ask......does Prolia allow the bone-building process to continue? Would you please confirm that you are asking about the bone that your body naturally builds or that you are inquiring about whether Prolia can protect the bone that a new bone-building medication produces?

After menopause bone building is reduced. Prolia protects the limited bone that is developed.

I don't think you can have it both ways. And I think it would be helpful to know your DEXA scores to know if your body is still, in fact, building bone. Have you presented this question to your medical clinician?

Please share the answer you receive so everyone can benefit. I will also be checking with you.

Chris

Hi @ contentandwell, it’s good to hear that you had success with Tymlos and having to make a decision on what new drug to take
is I’m sure frustrating. You mentioned that you have a few health issues and that will make your new decision more difficult I’m sure. Hopefully your endo was able to help you.

To answer your question regarding my taking a new drug : I do not have an appointment until the end of this month. I am not going to take Prolia because of the side effects I had and still have that I consider serious. I have been doing much researching about possibly taking the holistic route.
I just ordered some books regarding osteoporosis and possibly with diet, vitamins and exercise it will keep me going until I decide what decision I will make. I know my rheumatologist is not going to be happy with me but I need to be my own advocate.

You had success with Tymlos and possibly you will be able to tolerate Prolia. Good luck and let us know what decision you made. Keep us posted.

I have same question.

I scanned the posts in this thread thus far and apologize if I missed any comments about this, but I am wondering if those with experience taking Prolia have experienced the documented side effect of a raise in cholesterol levels?

I recently had a successful annual DEXA scan, where it appears a year of Proleria (two injections) in combination with PremPro has increased my bone density scores. However, my bloodwork came back with a sudden spike in cholesterol levels - something I haven't experienced before and atypical to my heart-health-prioritized lifestyle (daily exercise, mostly whole-food diet, etc.). I am awaiting my doctor's response, but would like to survey the room and correspond with patients who may have also seen this occur. I did find this as a "top" side effect of Prolia in the pharmaceutical company's drug fact sheets, so I don't think it's out of the question that there's a good likelihood of a connection here.

I'm overly anxious about this as there's a history of heart disease in my family, though from what I can see it is mainly tied to unhealthy lifestyle choices.

Look up the bad side effects of Prolia. It made my nocturnal cramps much worse. NEVER will I ever take it again. I don’t care how high a risk of fractures that I am & I’m very high.

Thank you, @momcatvw . I am sorry to hear you've not had good luck with it and hope you've found something suitable to manage your bone density.

Luckily, I've not experienced much change aside from the cholesterol level spike. However, I'm not the standard age to receive treatment for bone density and have a concurrent issue which caused me to experience poor bone density at a young age. I am very very pleased (and relieved) to see my DEXA bone scan actually show an improvement over the last year instead of the nose-dive decline I was seeing on my annual scans.