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Liver transplant - Let's support each other
Transplants | Last Active: 12 hours ago | Replies (1623)Comment receiving replies
@scooterbill, I want to extend my personal welcome to the Liver Transplant support group. I am a transplant recipient and I am sorry to hear that your son is very ill. As a parent, I can understand your fears and concerns about him waiting to be eligible for a transplant.
I had my transplant in 2009, when I received a liver and kidney transplant at Mayo Clinic in Rochester. My husband was my caregiver. My pre transplant disease and progressing illness were like a nightmare for both of us, but as I sit here writing this today, I am in good health and ready to assist you and support you on your journey.
Scooterbill, Are you looking for support as a caregiver? Or do you want information about the evaluation process for liver transplant? What questions would you like to ask?
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Actually all of the above. He is married but his wife works 5 12 hours shifts at a hospital. All he is doing now is sleeping all the time. He says he is to tired to talk and doesn't want me to mention his illness to anyone outside of our family. A little history for you: He has been going to doctors for over 3 years trying to find out what was wrong with him. He started out not being able to eat without getting sick and feeling bad. But he continued his life working and not looking like anything was wrong with him. Approximately 3-4 months ago he got Covid and then it turned into pneumonia. That put him into a downward curve. He went to the VA and they ran test and found out the problem. He is not doing well and my daughter is a RN and wants to get him somewhere that will work faster than the VA. I feel like my hands are tied and I do not know what to do. Can you give me some advice please?