Extreme outer ear pain: What can it be?

Posted by ellienewfan @ellienewfan, Feb 4, 2013

Please....someone help me.

I’ve visited my allergist, an ear-nose-throat specialist and my own internist.
None of them have ever heard of my problem and don’t know how to help me.

Started approx 20 yrs ago, Every couple of months I would get an awful pain on one of my ears if I had been laying on it during the night. It would happen to either ear, whichever one I laid on.

To describe the pain. It is so intense that it wakes me. Pain is NOT inside the ear but around the edges of the entrance of it. It is so painful, I can’t touch it. It will be throbbing. It also hurts tremendously behind, towards the bottom back of the ear. Can’t touch that either. The only thing that will make it go away is when I then get up and stand and within approx 30 min it is gone. I even tested it by massaging behind the ear (once I could bear to touch it) and it seemed to make pain go away faster.

The last approx 3 years, I have no longer been able to even lay on either ear when in bed because now the pain will come every time. I have learned to sleep on my back. Sometimes I would still move onto my side during night, and wake up with pain.

For last 6 months, I’ve been having pressure and achy feeling around one of the ears, even while laying on my back. Then I started getting the pain even while sleeping on my back.

I am very much afraid that the day will come when I will no longer be able to lay down in my bed to go to sleep.

I am desperate to get to the bottom of this and perhaps for first time in 20 years be able to comfortably lay on my side in bed.

My ENT doctor said my ears are healthy .... i have no hearing loss.

This ear pain, however, is starting to affect my daily living, since I don’t seem to be able to get the restful sleep I need.

I will be forever grateful if someone could pinpoint this. thanks.

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

@ellienewfan, what allergy medication are you taking and how often? I have had this pain (30yrs) on the outside of both my ears, I purchased the pillow with a hole. It works most of the time but I still get the pain sometimes. I currently don't have any allergies, as I've been tested for them. I'm wondering if Ibuprofen would work as it's an anti-inflammatory.

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@lioness

@poco that is interesting to read about moisturizing you ears before bed . I The Dr gave me a ointment to put on my ears 3 times a day one before bed so guess there is something to it . Thanks for the info . We all give tips as to what helps us .

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Meloxicam.

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@bon_bon

@ellienewfan, what allergy medication are you taking and how often? I have had this pain (30yrs) on the outside of both my ears, I purchased the pillow with a hole. It works most of the time but I still get the pain sometimes. I currently don't have any allergies, as I've been tested for them. I'm wondering if Ibuprofen would work as it's an anti-inflammatory.

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I tried ibuprofen several times . did not work for me....but could for you. I used feather pillows so I could punch hole where my ear would be. once a day I was taking two allergy pills cetirizine which is generic for Zyrtec. keep in mind that my idea that mine was allergy related is just my guess since nothing else changed in my routine or medical situations. my allergies started approx. 30 years ago so it would be logical that inflammation and pain was related to that. also, after the pain was gone, and I started to go to one pill a day instead of two, in couple of weeks my right ear (bad one) started to feel like it was coming back. I quickly went to 2 pills a day again. after a couple of weeks, went back to one a day. it has not come back since that time, last fall. I am so lucky. by the way I used to get up in middle of night when pain woke me and sit up for about 5 minutes or so. pain would go away. later I discovered if I massaged around outside of ear it would go away faster. started softly and increased pressure as I could tolerate it. I wonder if inflammation of cartilage can occur for many reasons. when I was at ENT and he mentioned about the inflamed cartilage, he said "buy the highest thread count of pillow casing, that should help". I could not understand how that could be but did buy it as he suggested. shortly after that all pain was gone. I can't imagine that the thread count could have done it. but it's wonderful to sleep on ...ha ha. good luck to you.

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@ellienewfan

at least i'm not alone in this. no redness, no swelling, etc. Doctors i saw (ear, nose, throat doc.; my own internist; had exrays and MRI) looked at me funny when i tried to explain my situation. thanks @bearylynn,i also have been bunching up a pillow so there is least amount of touching my ear. i seem to be able to somewhat lay on my left side, but my right cannot abide it. in fact if i even lay on right side even without anything touching my ear, i'll still get it.terrible pain. i am currently 72, and think that perhaps i'll never get rid of this and must suffer with this for rest of my life.

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I do realize that this post is 4 years old but I had to take a chance and put my input in. I have this issue as well and I am wondering; do any of you that have this issue, have fibromyalgia? I do and I am wondering if this could be that?

Peace

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@hippygrandma

I do realize that this post is 4 years old but I had to take a chance and put my input in. I have this issue as well and I am wondering; do any of you that have this issue, have fibromyalgia? I do and I am wondering if this could be that?

Peace

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Hi @hippygrandma, welcome to Mayo Clinic Connect. While this discussion was started 4 years ago, it is still active. I'm confident that @ellienewfan @nibor63 @lioness @celesteh77 and others will join me in welcoming you. While we wait for the others to join in, I also want to let you know about the fibromyalgia discussions in the Chronic Pain group:
- Feeling at my wits end with Chronic Pain and Fibromyalgia https://connect.mayoclinic.org/discussion/feeling-at-my-with-end-with-chronic-pain-and-fibromyalgia/
- Fibromyalgia https://connect.mayoclinic.org/discussion/fibromyalgia-3/

Hippygrandma, Do you feel that fibro contributes to the outer ear pain? What have you tried to relieve the pain?

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@colleenyoung

Hi @hippygrandma, welcome to Mayo Clinic Connect. While this discussion was started 4 years ago, it is still active. I'm confident that @ellienewfan @nibor63 @lioness @celesteh77 and others will join me in welcoming you. While we wait for the others to join in, I also want to let you know about the fibromyalgia discussions in the Chronic Pain group:
- Feeling at my wits end with Chronic Pain and Fibromyalgia https://connect.mayoclinic.org/discussion/feeling-at-my-with-end-with-chronic-pain-and-fibromyalgia/
- Fibromyalgia https://connect.mayoclinic.org/discussion/fibromyalgia-3/

Hippygrandma, Do you feel that fibro contributes to the outer ear pain? What have you tried to relieve the pain?

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@hippygrandma. Hi. Just thought I'd give u my experience w the ear pain. Had it since i was in my late 40's. Am now 76. As i got older it became worse. Also have allergies. Also started in late 40 s. Never made connection. Allergies would make me very sick day after flying. Allergist suggested i double up on my allergy pills. Was taking generic once a day. So i did. Could fly again without getting sick. For some reason i kept taking 2 pills. Last fall my left ear no longer hurt at all. A month later the right one stopped hurting. I've thought about it and the only thing different that i did was the allergy pills. BTW the doc said he thought my cartilage behind each ear was inflamed. But he had no cure. I had lots of tests done. No results showing anything wrong. I stopped doubling up on allergy pills. It started to come back. Resumed the two pills. Went away again. Currently on the 2 pills. Periodically I'll try the 1 pill. But it keeps coming back. This may not b the answer for u but i can lay on both ears ..no pain. It's wonderful. Good luck to u hope u find an answer.

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I have this problem intermittently. But, massaging a cream behind and on the outer cartilage seems to prevent it. I’m wondering if glasses exacerbate it? Does anyone have the issue who does NOT wear glasses?

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@colleenyoung

Hi @hippygrandma, welcome to Mayo Clinic Connect. While this discussion was started 4 years ago, it is still active. I'm confident that @ellienewfan @nibor63 @lioness @celesteh77 and others will join me in welcoming you. While we wait for the others to join in, I also want to let you know about the fibromyalgia discussions in the Chronic Pain group:
- Feeling at my wits end with Chronic Pain and Fibromyalgia https://connect.mayoclinic.org/discussion/feeling-at-my-with-end-with-chronic-pain-and-fibromyalgia/
- Fibromyalgia https://connect.mayoclinic.org/discussion/fibromyalgia-3/

Hippygrandma, Do you feel that fibro contributes to the outer ear pain? What have you tried to relieve the pain?

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Hello and thank you so much for the warm welcome! I am honored to be part of such a loving, intelligent and thoughtful group.

In regard to your question on whether I feel that fibromyalgia contributes to the outer ear pain, I can only reply with "I have no idea sister" lol! I have many pains and aches that I wonder if they have to do with fibro. As far as what I have tried to do to relieve it, there is not much to do. I keep going from one side to the other, like one of the other ladies in the forum said; I try to put my hand under my cheek. I try to put my hand around my ear, nothing works. I can only imagine that it happens more than I know because I pretty much have to drug myself to sleep because of severe temperature issues and pain from osteoarthritis and osteonecrosis, fibromyalgia, Dercums Disease, etc etc...

I definitely will check out the fibromyalgia link as well thank you so very much I look forward to contributing and learning from you all.

Peace

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@ellienewfan

@hippygrandma. Hi. Just thought I'd give u my experience w the ear pain. Had it since i was in my late 40's. Am now 76. As i got older it became worse. Also have allergies. Also started in late 40 s. Never made connection. Allergies would make me very sick day after flying. Allergist suggested i double up on my allergy pills. Was taking generic once a day. So i did. Could fly again without getting sick. For some reason i kept taking 2 pills. Last fall my left ear no longer hurt at all. A month later the right one stopped hurting. I've thought about it and the only thing different that i did was the allergy pills. BTW the doc said he thought my cartilage behind each ear was inflamed. But he had no cure. I had lots of tests done. No results showing anything wrong. I stopped doubling up on allergy pills. It started to come back. Resumed the two pills. Went away again. Currently on the 2 pills. Periodically I'll try the 1 pill. But it keeps coming back. This may not b the answer for u but i can lay on both ears ..no pain. It's wonderful. Good luck to u hope u find an answer.

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Hello thank you for posting, that's very interesting. I wonder what is in the allergy pills, is there anything in the allergy pills that could be anti inflammatory? I am very happy to hear that you no longer have the pain.

Peace

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@hippygrandma

Hello thank you for posting, that's very interesting. I wonder what is in the allergy pills, is there anything in the allergy pills that could be anti inflammatory? I am very happy to hear that you no longer have the pain.

Peace

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Interesting question. I shall have to research. Will post if i find anything worth noting

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