Connect
Does surgery work for Laryngopharyngeal Reflux (LPR)?
Since December 13, 2016. My symptoms started with a soar throat, soar inflamed taste buds on the tip of my tongue and inflamed salivary glands on my soft palate. My tongue, throat and soft palate had a painful burning sensation that was on and off. My General practitioner referred me to an Ear Nose throat specialist who referred me to an oral surgeon who referred me to an oral pathologist for burning mouth syndrome. After wasting 3 months of running around with these Dr's and being tested for oral thrush, hsv tests, vitamin deficiency tests, auto immune deficiency tests, cultural bacteria tests all which came back normal. I decided to go for a second opinion with another E.N.T. specialist who performed a camera scope and diagnosed me with acid in my throat. I was put on Dexilant and noticed the pain dissipate almost immediately only problem was I couldn't tolerate the medication. I was then put on Tecta and referred to a G. I. My general Practitioner did some blood work for h pylori and I tested positive. I started to develop tinitus in my left ear. I had a gastroscopy where they found a 2 cm Hiatel Hernial and my lower sphincter was weak. Thats when I was told I have a mild case of gerd, but I don't suffer from any heart burn. I was put on triple dose of antibiotics for h pylori and continued with the Tecta, domperadone and sucrolafate. I'm getting a little relief from the PPI and meds but I still suffer from bitter reflux taste and burning pain in my throat, soft Palate, the tip of my tongue and dry mouth that comes and goes. I'm in the process of having a 24 hr ph level test done. The G. I. I was seeing says my esophagus biopsy tested clean and he doesn't believe what is happening in my oral cavity is related to my gut. He stated in order for acid to travel to the throat it has to travel through the esophagus and the esophagus tested clean. Thus he can't help me anymore. I'm so confused my ENT says I have acid in my throat and the G.I. doesn't agree.
Like
Helpful
HugInterested in more discussions like this? Go to the Digestive Health Support Group.
Connect
I actually wondered that myself when I was taking Amazeperole. I know I haven't spelt that right. Then I saw the gastro enterologist who put me on Pantoprazole. It is not good to be on this type of medication for long. He had me on a strong dose and eventually took me off because they hadn't helped.
I know that they can measure the acid by putting a tube from the nose down into the stomach. They keep you in overnight in hospital. It sounds horrible but it might be helpful. My appointment for this was cancelled due to Covid and I haven't reorganised an appointment. Does anyone have experience of this.
Wine is very acidic and should be avoided.
Hi,
I too have been diagnosed with LPR. I want you to try this as it has really helped me. Purchase a bottle of Apple cider vinegar (very cheap) and mix one tablespoon with a 8 oz warm glass of water…..add a bit of honey (to get rid of the taste). Use a straw to drink it, as the acid is hard on your teeth. This simple and cheap method has helped men IMMENSELY and I hope it will you to. If you indeed have LPR, (hard to diagnose) will notice a huge improvement the same day!!! Not kidding!
Please let me know how this works for you. Give it a try, you have nothing to lose and so much to gain…I know!
-
Like -
Helpful -
Hug
1 ReactionDrinking Apple cider vinegar is like pouring acid down your throat, very bad!
-
Like -
Helpful -
Hug
3 ReactionsI had this ph test done for a 24 hr period. I was sent home after they put down the tube and returned after 24 hours to have it removed. It's not pleasant because you feel it, but you can get through it if you need the test. They did the test because they thought it might not be acid reflux but non-acid reflux. If you think it's acid reflux then maybe try Nexium (a PPI) - even though it was intended to be short term, millions of people are taking it longer term, and if Nexium helps then it's acid reflux and you don't need the ph test.
I just had this procedure done and it took 8 minutes. You are put to sleep for that short time and go home right away. Only side effect was a slight sore throat for 3 days. No big deal. Do it!
Was this definitely the test where they put the tube through the nose? They told me it would be for 24 hours. I had the endoscope where they put the tube in the mouth and down to the stomach, which is a different test and I was asleep for a few minutes and sent home.
Thanks for responding.
navia, I just want to say that I truly understand how you feel. This problem has truly put a damper on my life. The strange thing is that I was sent to ENT who said it was a GI issue, and to go back to GI. When I described my Sx. to GI and asked him if he ever heard of it, he said NO. I have been through all the tests except for the one you mentioned which he says is very painful. I have learned more from everyone on this site, than from this very large group of GI docs.I have read a lot about it. I can tell you that concentrated sugar products make it worse, especially chocolate. I can say that I have tried Mucinex for mucous relief and it has helped. I also bought a new cool mist humidifier for bedtime, and point it toward my face, and it has helped.I go back to see GI next month. I think I have received more help from people on this site than from the GI docs.Just my feelings. Take care and best of luck.
-
Like -
Helpful -
Hug
3 ReactionsI tried this and it didn't work. I was also told that it was the worst thing you can do. Have you spoken to a medical person about this. All vinegars are acid. it doesn't make sense. I did try it sometime ago just to be sure but it didn't improve me.
Sorry. But thanks for trying to help.
-
Like -
Helpful -
Hug
2 ReactionsI have also been on the run around between ENT and GI. I think the truth is that it is partially both and they should work together which my 2 consultants seem to quite well. It took ages to be diagnosed because a lot of GPs don't know anything about it and think it is caused by sinus. It does seem though that it is one of those chronic problems that you either live with and try and handle your diet. That book Dropping Acid is very good and has helped a lot of people.
Or there are surgery options and I believe Mayo Clinic is one of the top clinics to treat this. I am considering it but probably need to have the nasty 24 hour test first.
-
Like -
Helpful -
Hug
3 Reactions