Neuropathy symptoms are worse when I sit or lay down: Anyone else?

Mine was an extremely bad case of shingles.

I suffer from neuropathy of the feet. I have started physical therapy with laser therapy twice a week. I just had my first treatment. The
therapists have been working with laser and claim that it will help, along with the physical therapy of exercises, etc. I Will keep everyone posted as I try this road.

My GP's nurse commented that neurologists can be a strange bunch. My husband who had Parkinson's had a neurologist who hated his patients. He actually made me cry; he was so cruel to my husband. A member of the in persons support group said that she wished she could bomb the club where he was playing in a band. The health plans have to take whatever neurologists they can get that will work with a health plan. I finally found a good motion specialist for him.

Hello, I’m kind of late on the scene here. I get severe Paresthesia and neuropathy, sitting or lying down, throughout my entire body, however, mine began after the Covid vaccine, 24 hours after to be precise. I dread going to bed at night because I know in the middle of the night I will wake up and my body will feel asleep. Anyone else have it this severe?

Regards,

Tiffany Menendez

Welcome Tiffany @tmenendez, We are happy you found Connect! Hopefully you can find some answers and a treatment that helps with your symptoms. I can't imagine dreading going to bed at night. That has to be difficult. I've had hands and arms fall asleep but not my entire body.

There is another discussion you might find helpful:
-- Paresthesia, abnormal sensations: https://connect.mayoclinic.org/discussion/paresthesiaabnormal-sensation/.

Have you discussed your symptoms with a doctor or neurologist yet? Have they suggested any treatments?

Thanks so much for the info! Yes, I’m currently on prednisone again for a flareup. It stems from the covid vaccine, that we know for certain. I’ve tried gabapentin, didn’t tolerate it well. Awaiting a visit with the neurologist again.

Regards,

Tiffany Menendez

I don't have so much severe discomfort but it gets bad when I stop moving so I need to move as often as a half hour at least so but I don't know about sleeping at night I haven't solved that part but it does help to keep moving for me good luck

Actually my PN gets worse the more I sit. Going to concerts or performances that have periods of sitting for an hour or more before intermission are difficult. But the worse is flying. Even sitting on the aisle seat in walking occasionally only helps a little. I haven't made a good plan for flying. Anyone got any ideas?

Got diagnosed with SFN 5 years' ago. Was able to jog 10 to 12 kilometers daily without missing a single day for 4 years. For the last one year mobility has become a big challenge due to severe numbness and pain in feet. Getting worse on a daily basis despite major diet changes and supplementation. It will be an understatement to say that quality of life is extremely compromised. Am very depressed. Don't enjoy anything. Wish you and others on this forum a speedy and permanent relief.

I hav similar symptoms. When I am up and about my feet are a little numb. Nothing else.

When I lie down mine goes up.

My Doctor now has me on 900 milligrams. of gabapentin.

It helps.

But the pain still keeps me awake some nights.