This is what I know that happened with me. Mine started about six months ago, but I also have something undiagnosed going on in my body. Only happens when I go to sleep at night. I am a side sleeper. When I go to sleep my burning, red, swollen, painful ear wakes me up. Happens in both ears. Doctor told me it's inflammatory. Said take 600 my. Motrin before bed. Worked. But, had to take every night. Not necessarily good for you over long period. So, I didn't take it every night and suffered with waking up in pain during night. Then I had a colonoscopy and when I cleaned out my colon, the pain went away completely. Only lasted for two weeks, though. After that, I went back to the Motrin, and no longer worked. Don't know what all this means. Will let you know, when I know more. Scheduling biopsy of my ear. Talked to doctors about it. Most said it can't be so that colon has anything to do with ear. Rest told me "it's in my miñd". Basically that I'm crazy.

@nibor63 I'm really sorry to hear of this problem you are having. If you are comfortable sharing more information, it might be helpful to know what types of doctors you have seen for this problem. Since you have been told that this is an inflammatory problem have you seen a doctor who specializes in inflammatory disorders? Do you have other inflammatory disorders? Here is a website that offers some information about inflammatory disorders https://www.niams.nih.gov/health_info/Autoinflammatory/. It will be interesting to see what the biopsy of the ear reveals. Please keep in touch with Mayo Connect. We are here to offer you support and encouragement along your journey. Teresa

Hello @franjan, in regards to your issues with having trouble figuring out the order of posts, are you replying primarily by email? If so, I suggest clicking the VIEW & REPLY button at the bottom of your email notification and it will take you to the full discussion. From there, you should be able to scroll up and down to get a better feel for where you are in the conversation.

As far as the dates & times go, they can seem to be a bit out of order since when you are on the website you have the ability to reply to any post, which means you can reply to one of the first posts from an older date or at the bottom which would be the newer dates. It can be a bit confusing, but that is the best way to try and understand it. I hope this helps, do you have any other questions I could help with?

Thank you @justin for your reply. Yes, it is confusing, as the post right under yours that says 16 mins ago, is a post that has a date Mar 31. Oh, well, I'll just try and not understand it and just know that the order of post are confusing. 🙂

I have seen ENT, Rhuematologist, Neurologist, Orthopedist, Oncologist, had all annual exams, Gastroenterologist, and more. Most told me I'm Crazy. That was including two PCP's. Trying to find new PCP. I have foot pain, low back pain, and now some blurred vision in right eye. Just saw Optometrist. Saw spot on Retina in right eye. Going to see specialist next week. Scared. Had blood work to test for inflammation, came back negative. White blood cell count is up, but not over normal range. Doctors not concerned.

@nibor63 Hello - It sounds as if you have seen a lot of doctors and had a lot of tests. I can understand your frustration at not having a diagnosis and therefore not getting a treatment plan. I see that you were going to schedule a biopsy of the ear. If that has been done, do you have any results from that yet? I understand that doctors can seem quite unconcerned when the diagnosis is not obvious to them, but I would encourage you to keep trying to find a doctor who can offer you some new suggestions. If you live near a large medical center or medical school they are often able to offer some expertise that smaller hospital systems don't have. Do you live near one of the Mayo facilities (Minnesota, Florida or Arizona)? Best wishes as you continue this journey to find a diagnosis and a treatment for your problems. Teresa

It's treated with Steroids, if that's what it is.

Why would i treat it with medication when my pillow has worked for 7 years?

I know it’s been a while since you posted this… But what happened when you went to the doctor? Did you have relapsing polychondritis?