Anyone else diagnosed with POTS after having Covid?

I have been told my POTS is a common symptom of post covid. Most patients dont have access to a cardiologist for obtaining a formal diagnosis so primary care physicians may share helpful medical techniques like sleeping head elevated and feet up whenever possible. Many more to help but best to check with your doctor to assure all safe for your particular symptoms and medical history. Hope this helped!

I have. I’m one year out and my POTS and gut issues are likely from the dysautonomia from my immune response to covid infection. I was vaccinated and careful, but got it in peak of Omicron anyway. There is likely micro clotting and endothelial dysfunction behind all of this. Possibly viral persistence as well. This is not medical advice, but sharing what helps ME:
Most helpful for my POTS: 1) Elevate the head of bed. 2) drink electrolyte water before getting out of bed. I’ve tried many and like LMNT best - no sugar so little insulin spike, but nice taste and lots of salt to help you increase your plasma volume. This link will get you a free sample pack w order. It’s expensive, but I feel it’s worth it. Full disclosure, I get a bonus box too. I drink a full liter w 2 salt packs each morning).
http://elementallabs.refr.cc/michellepuent
3) Physical Therapy. I do recumbent cycling and floor exercises.
4) Medications. For me, a combination of a central alpha agonist [suppress sympathetic (fight/flight) overdrive] and a cholanesterase inhibitor [allows increased acetylcholine- the parasympathetic (rest/ digest) neurotransmitter].
For my GUT ISSUES 1) dietary change to low added sugar / flour. Eat all meals within an 8 hour window to reduce insulin & inflammation over that 16 hours fasting. 2) Supplement with unsweetened Metamucil if diarrhea 3) Supplement with 500-1000mg Lycine before meals. [This amino acid competitively blocks arginine which is vital to covid’s (and other viruses like herpes) reproduction]. It is also anti inflammatory for the gut.
Hope this helps and you control your symptoms if not recover completely. I’m starting to accept I will not ever be able to “cure” myself, sadly. Maybe all those brilliant researchers will discover something, someday. 🤞
-Michelle

I have POTS from my booster shot- I also love LMNT for electrolytes and have a great neuro PT. I’m rowing and swimming in small intervals. I use abdominal compression tights too which is nice. And Midodrine for vaso construction but hoping that’s temporary. More than anything I’m focused on the balance of exercise and calming my nervous system when it feels elevated. This involves meditating and singing and other calming activities

Good point, I forgot to mention compression clothing. I’ve been reading a lot about how the mRNA vaccines are causing long covid because the spike protein alone can trigger the clotting cascade with altered fibrin folding, making our natural clot busting mechanisms less effective… next you end up w microclots plugging up your capillaries. It’s pretty alarming. Sorry to hear you are one of the vax injured.

Yeah we are all in a pickle but I believe we can heal. I haven’t done any testing for micro clots but plenty of other things… onward! Solidarity.

Pls what is POTS?

Advised ones body has hard time regulating blood pressure heart rate etc they think due to nervous system not able to control body functions. Always best to rule out other possible symptom causes and hope this helped

Thank you. It helped.

I have post Covid POTS (one of several post Covid health issues). I have saline infusions twice a week to increases plasma. This helps the blood move more readily. I am in the middle of a six month treatment plan. Infusion days are amazing!
This also helps with brain fog.
I feel quite good for about 36 hours following an infusion. I am able to do more cardio work on a recumbent bike these days. I struggle with POTS related exercise intolerance so the boost in exercise is greatly appreciated. I also do seated Theraband and body weight resistance exercises.
Pacing is so important on infusion days. It’s easy to do too many things and set off a spiral of symptoms.
I also take a beta blocker to keep my heart rate from getting too high.
I like Liquid IV for an electrolyte supplement.

I wear a digital medical ID bracelet when I’m out of the house. Even with all of the precautions, tachycardia and subsequent syncope still happen. The ID band is from a company called MyID. There is a QR code on the back of the bracelet that links to your account (and app) which includes diagnosis, emergency contact info, medication allergies, doctor contact info, list of meds I currently take, and uploaded letters from doctors. This was incredibly helpful recently for medical staff.

I’m wishing you all the best as you navigate your post Covid health.

I never was diagnosed (because my HR never really gets above 100 bpm unless I am doing harder exercise), but my heart generally pounded very hard after changing positions quickly or going upstairs, walking up a hill. Note that I am a well-trained endurance runner, so this never used to be an issue for me.