Posted by wiggins32 @wiggins32, We are rare; so it doesn't matter, we are skipped, ignored and passed over like we don't have a problem. I understand your story, been there done that and only insanity is facebook groups who traveled the same road. I never smoked, drugs or alcohol but people look at my lungs "stop smoking", scare tissue is from getting cold: cold induced asthma (Doctors like to think your smoking: not from cold weather or going outside.) I understand: hospital 30 days in Nov 2022 and no insurance (WBC 24-27-RBC 7.8 hemoglobin 19.2 and list goes on. Never was anemia (over load or leveled high all my life; first time anemia from Myelofibrosis goes on but I've been trying to get on disability for years, Doctor's notes 20 years back: Can't work due to cold (several judges denied me with doctors notes: Sept 25, 2020 denied again "judge said I was making up my symptoms (STILL NOT ON DISIBLITITY) 6 weeks later I was in hospital with cellulitis for a month $300,000. no insurance (infection as big as my arm in my back- hospital sent me home - no insurance for nurses so my neighbor next door would come pull my (packing out of my back and do packing) for free everyday for months. I would have died without my neighbors help) The hospital missed polycythmia 2020 so no insurance (son had SSI) that's what we have been living on for years. I was just diagnosed with polycythmia when I landed in hospital Sept 22-30, 2022 / this time medical emergency insurance (Insurance denied $85,000 hospital and medical bills so far "medically unnecessary " fighting it . This is medical neglected because of my rare diagnosis. So far the insurance only pays for medication, 1,500 on Hydroxyurea and numbers haven't come down (3 BPM 109/70 to 250/159 in mins) BP swings like my sisters (they go extremely low/high same doctor visit) I'm always high . If they would have catch polycythmia 2020: i could of had insurance and home health nurses but my neighbor has been my doctor/ nurse without a degree - she has saved my life several times (The government doesn't care if your alive or dead) ! We need this group: it's our only way we can feel normal in insanity world. God Bless YOU! My heart goes out to you!