Anyone had Fecal Microbiota Transplant (FMT) for C Difficile?

I was hospitalized for 16 Days in 2020 for severe Cdiff, Toxic Megacolon, Lymphocytic Colitis. Dr's were considering Surgery .
I was started on Flagyl IV, Vancomycin IV for several days. Neither seemed to be making a difference. Then my Infectious Disease Doctor started Dificid. Within 2-3 days I was significantly better. I was released having lost approximately 20 lbs. I was instructed to finish my Dificid at Home and come to the ID Dr for an IV on Zinplava (a very expensive Monoclonal Antibody Medicine-(Had to be approved by Medicare before they would pay for it). I then went for my First FMT ON 1-28-21. I did fairly well until January 2022, when I had another episode of Cdiff. Took another round of Dificid at home per my Infectious Disease (ID) Doctor. He said since my Stools were fairly normal, no FMT this time.
Again In April 2022 I had another Cdiff episode. Was put on Dificid again. Also had Second FMT , an attempted to take 2nd round of Zinplava and had a bad reaction after IV first started so the ID Doc stopped.

Fast forward to August 24th 2022 another Cdiff episode. Back on Dificid for 10 days. No Zinplava this time . Went for 3rd FMT on September 9th, 2022. So far so good. But really beginning to wonder if there is ever an ending point to this awful Disease.
FYI, my Gastroenterologist was in agreement to all this Treatment the whole way through. Sorry so long, but it's been a long road just to this point. Anyone else experienced this seemingly never-ending saga with their Cdiff?
I have tried all sorts of Dietary ideas. It really doesn't seem to make any difference what I eat the end result is always the same. Cdiff again.

I was hospitalized for 16 Days in 2020 for severe Cdiff, Toxic Megacolon, Lymphocytic Colitis. Dr's were considering Surgery .
I was started on Flagyl IV, Vancomycin IV for several days. Neither seemed to be making a difference. Then my Infectious Disease Doctor started Dificid. Within 2-3 days I was significantly better. I was released having lost approximately 20 lbs. I was instructed to finish my Dificid at Home and come to the ID Dr for an IV on Zinplava (a very expensive Monoclonal Antibody Medicine-(Had to be approved by Medicare before they would pay for it). I then went for my First FMT ON 1-28-21. I did fairly well until January 2022, when I had another episode of Cdiff. Took another round of Dificid at home per my Infectious Disease (ID) Doctor. He said since my Stools were fairly normal, no FMT this time.
Again In April 2022 I had another Cdiff episode. Was put on Dificid again. Also had Second FMT , an attempted to take 2nd round of Zinplava and had a bad reaction after IV first started so the ID Doc stopped.

Fast forward to August 24th 2022 another Cdiff episode. Back on Dificid for 10 days. No Zinplava this time . Went for 3rd FMT on September 9th, 2022. So far so good. But really beginning to wonder if there is ever an ending point to this awful Disease.
FYI, my Gastroenterologist was in agreement to all this Treatment the whole way through. Sorry so long, but it's been a long road just to this point. Anyone else experienced this seemingly never-ending saga with their Cdiff?
I have tried all sorts of Dietary ideas. It really doesn't seem to make any difference what I eat the end result is always the same. Cdiff again.

Has your gastroenerologist tried cholestyramine? My husband struggled with for six months after C diff. He took multiple meds but nothing helped. Finally, his GI doc suggested an off label prescription for cholestyramine, a powder to lower cholesterol. Apparently, it binds stool like it binds cholesterol. My husband started on a full dose and gradually tapered off. Finally, his intestines calmed down. When his gut flares up now, years later, he still takes a low dose of cholestyramine for a week or two.

I was hospitalized for 16 Days in 2020 for severe Cdiff, Toxic Megacolon, Lymphocytic Colitis. Dr's were considering Surgery .
I was started on Flagyl IV, Vancomycin IV for several days. Neither seemed to be making a difference. Then my Infectious Disease Doctor started Dificid. Within 2-3 days I was significantly better. I was released having lost approximately 20 lbs. I was instructed to finish my Dificid at Home and come to the ID Dr for an IV on Zinplava (a very expensive Monoclonal Antibody Medicine-(Had to be approved by Medicare before they would pay for it). I then went for my First FMT ON 1-28-21. I did fairly well until January 2022, when I had another episode of Cdiff. Took another round of Dificid at home per my Infectious Disease (ID) Doctor. He said since my Stools were fairly normal, no FMT this time.
Again In April 2022 I had another Cdiff episode. Was put on Dificid again. Also had Second FMT , an attempted to take 2nd round of Zinplava and had a bad reaction after IV first started so the ID Doc stopped.

Fast forward to August 24th 2022 another Cdiff episode. Back on Dificid for 10 days. No Zinplava this time . Went for 3rd FMT on September 9th, 2022. So far so good. But really beginning to wonder if there is ever an ending point to this awful Disease.
FYI, my Gastroenterologist was in agreement to all this Treatment the whole way through. Sorry so long, but it's been a long road just to this point. Anyone else experienced this seemingly never-ending saga with their Cdiff?
I have tried all sorts of Dietary ideas. It really doesn't seem to make any difference what I eat the end result is always the same. Cdiff again.

I hope the tapering off approach can help you live more normally!

I was hospitalized for 16 Days in 2020 for severe Cdiff, Toxic Megacolon, Lymphocytic Colitis. Dr's were considering Surgery .
I was started on Flagyl IV, Vancomycin IV for several days. Neither seemed to be making a difference. Then my Infectious Disease Doctor started Dificid. Within 2-3 days I was significantly better. I was released having lost approximately 20 lbs. I was instructed to finish my Dificid at Home and come to the ID Dr for an IV on Zinplava (a very expensive Monoclonal Antibody Medicine-(Had to be approved by Medicare before they would pay for it). I then went for my First FMT ON 1-28-21. I did fairly well until January 2022, when I had another episode of Cdiff. Took another round of Dificid at home per my Infectious Disease (ID) Doctor. He said since my Stools were fairly normal, no FMT this time.
Again In April 2022 I had another Cdiff episode. Was put on Dificid again. Also had Second FMT , an attempted to take 2nd round of Zinplava and had a bad reaction after IV first started so the ID Doc stopped.

Fast forward to August 24th 2022 another Cdiff episode. Back on Dificid for 10 days. No Zinplava this time . Went for 3rd FMT on September 9th, 2022. So far so good. But really beginning to wonder if there is ever an ending point to this awful Disease.
FYI, my Gastroenterologist was in agreement to all this Treatment the whole way through. Sorry so long, but it's been a long road just to this point. Anyone else experienced this seemingly never-ending saga with their Cdiff?
I have tried all sorts of Dietary ideas. It really doesn't seem to make any difference what I eat the end result is always the same. Cdiff again.

I have been considering a fecal transplant. Do I need to contact a doctor now before I get c-diff again? Does c-diff need to be active to have the transplant? Any information you have would greatly be appreciated. Thank you.

Have rC-diff - 7th time in less than 2 1/2 yrs. Tried all antibiotics (dificid, Rifaximin, etc.) for C-diff, plus human monoclonal antibody infusion two times (Bezlotoxumab). Vancomycin is only one that works, but only for 3 - 4 months.
Researching FMT, but have reservations. Is there anyone who has had FMT who is willing to share
after-effects, success/failure rate, and which procedure was used?
Thank you, Elaine