1. < Digestive Health

Anyone had Fecal Microbiota Transplant (FMT) for C Difficile?

Posted by chatticathi @chatticathi, Feb 21, 2022

I dont know where to open this topic, not cancer, should I do it or not, 5 bouts of c diff in 2021, 3 hospital stays, 1 c diff now, vancomycin for 6 months, off it for 2 weeks, that's when I got c diff again, now, what the hell to do, I'm 75 and terrified

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epm | @epm | Nov 22, 2023
In reply to @colleenyoung "Hi Elaine, I moved your question about fecal microbiota transplant for c-difficle to this existing discussion..." + (show)
@colleenyoung

Hi Elaine,
I moved your question about fecal microbiota transplant for c-difficle to this existing discussion to help you easily connect with other members:
- Anyone had Fecal Microbiota Transplant (FMT) for C Difficile?
https://connect.mayoclinic.org/discussion/fecal-transplant-1/

Here's a list of other discussions that might interest you on:
FMT https://connect.mayoclinic.org/search/discussions/?search=fecal+transplant
C-difficile
https://connect.mayoclinic.org/search/discussions/?search=c+diff

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Thank you EVER so much for your help, Colleen Young.
Feel like I'm now in the right place for information.
Elaine

REPLY
janet4038 | @janet4038 | Nov 22, 2023

I feel your pain and concerns. I have had cdiff 3 times this year and twice before that. The doctors are working on getting me a pill form for the fecal micro transplant. Ask your doctor about Vowst. I don’t like the idea of what the cure is but I will do what I need to do to stop cdiff. I will let you know if I can get it and how it went. Look up Vowst on the internet. There is lots of information on it.

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epm | @epm | Nov 22, 2023

Thank you SO much, Janet, for sharing that info. The hospital in CO at which my Dr. practices has not (yet) approved the pill form, but has just approved Rebyota.

So sorry that you, too, have been suffering with recurrent, debilitating bouts. My heart goes out to you.

Would very much appreciate hearing about your outcome.

In the past, has your Dr. recommended any probiotic to take? Or any special diet to follow?

I'm currently on pulse & taper of Vancomycin, which only works for a few months.

Thanks for responding.
All the best,
Elaine

REPLY
2 replies
epm | @epm | Nov 22, 2023

Oh, I know exactly what you mean. C-diff controls every aspect of our life, and having to isolate does not help our mood.

Hoping you have a good Gastroenterologist.

I'm new to this discussion, but feel the connectivity to others who understand.

Do your own research, too, to find what procedure you'd be comfortable with. Mayo Clinic seems to have fact-based answers.

Wishing you success in your search.

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janet4038 | @janet4038 | Nov 23, 2023
In reply to @epm "Thank you SO much, Janet, for sharing that info. The hospital in CO at which my..." + (show)
@epm

Thank you SO much, Janet, for sharing that info. The hospital in CO at which my Dr. practices has not (yet) approved the pill form, but has just approved Rebyota.

So sorry that you, too, have been suffering with recurrent, debilitating bouts. My heart goes out to you.

Would very much appreciate hearing about your outcome.

In the past, has your Dr. recommended any probiotic to take? Or any special diet to follow?

I'm currently on pulse & taper of Vancomycin, which only works for a few months.

Thanks for responding.
All the best,
Elaine

Jump to this post

Thank you Elaine. I am on my second taper of vancomycin. I got cdiff one week after my first taper. I take a probiotic called Floristor twice daily. I pray you find relief soon.

REPLY
karel | @karel | Feb 20 4:53pm
In reply to @epm "Thank you SO much, Janet, for sharing that info. The hospital in CO at which my..." + (show)
@epm

Thank you SO much, Janet, for sharing that info. The hospital in CO at which my Dr. practices has not (yet) approved the pill form, but has just approved Rebyota.

So sorry that you, too, have been suffering with recurrent, debilitating bouts. My heart goes out to you.

Would very much appreciate hearing about your outcome.

In the past, has your Dr. recommended any probiotic to take? Or any special diet to follow?

I'm currently on pulse & taper of Vancomycin, which only works for a few months.

Thanks for responding.
All the best,
Elaine

Jump to this post

Florestore is a good probiotic for c diff.
It's a little expensive but all the others don't really have any documentation that they help CD but Florester does

REPLY
janet4038 | @janet4038 | Feb 20 8:11pm

I feel your pain! I had c-diff 3 times in 2023 and had it twice prior to that. Did the long term vancomycin three times My doctor finally got me approved for Vowst. It’s a fecal micro transplant in pill form. I took it the last of December 2023 and have been c-diff free since then. I would talk to your doctor about it. Hope that helps.

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karel | @karel | Feb 26 8:22am

I JUST FINISHED THE FECAL TRANSPLANT, VOWST AND WHILE IT LOWERED MY BMS, THE CDIFF ODOR IS LIKE ALL OVER ME, AND IM REAL ANAL ABOUT CLEANLINESS, I KNOW I DEFINITELY STILL HAVE IT, I WAS WONDERING IF YOU HAD SUCH A REACTION. GOOD LUCK TO YOU. EVERYONE WITH THIS HORRRIBLE CONDITION YOU ARE IN MY PRAYERS.

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