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Anyone had Fecal Microbiota Transplant (FMT) for C Difficile?
I dont know where to open this topic, not cancer, should I do it or not, 5 bouts of c diff in 2021, 3 hospital stays, 1 c diff now, vancomycin for 6 months, off it for 2 weeks, that's when I got c diff again, now, what the hell to do, I'm 75 and terrified
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Hi bbarbiee ,
Yes. I was instructed to continue on a lactobacillus acidophilus probiotic. I have tried a Swanson Brand, as well as Nature's Bounty brand. Neither has seemed to make much difference.
Has your gastroenerologist tried cholestyramine? My husband struggled with for six months after C diff. He took multiple meds but nothing helped. Finally, his GI doc suggested an off label prescription for cholestyramine, a powder to lower cholesterol. Apparently, it binds stool like it binds cholesterol. My husband started on a full dose and gradually tapered off. Finally, his intestines calmed down. When his gut flares up now, years later, he still takes a low dose of cholestyramine for a week or two.
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2 ReactionsHi lengel,
Thank you for the Reply. I am glad to hear uour husband is better in this regard. Of interest, the Surgeon that was called in for consultation while I was hosptalized in November/December 2020 for Cdiff, and decided to hold off on Surgery at that time, did indeed start me on Cholestyramine twice daily. I took it the balance of my time in the Hospital, until 12-10-20. Then I was sent home on it (along with other meds) , and filled at my Pharmacy an RX from the Surgeon for twice daily use of Cholestyramine.
I did take it twice daily until 12-29-20 when I had to go to the ER for a Bowel Impaction. That was resolved by the ER Doc , but to say the least, it was unpleasant. Honestly I decided on my own to Discontinue the Cholestyramine and I havent had that problem again, thankfully.
But what I have had since is Cdiff , with short breaks of semi-normal life in between. That said, thank you for telling me about your husbands successful treatment. I may well try the Cholestyramine again with the gradual taper off as he did.
I hope the tapering off approach can help you live more normally!
Thank you very much! It would be a Blessing!
I am new here, and this might run a little ling, but I am putting it all out here trying to find answers.
It all started about 10 years ago or so. I would vomit and have diarrhea until there was nothing left to get rid of.
I wouldve feel like crap for a couple days, then would be better. As time went on, as i was getting sick, i would feel so much worse. Started going to ER when I had episodes, and all they could tell me is that my white cell cout is sky high and i had low blood pressure. Needless to say, this went on for a few YEARS until i finally got diagnosed with C DIFF. Started the Meds, but would continue getting sick once a month or so. Finally got FMT (pills) and I felt great for a year and a half. Then it came back, making me the sickest I have ever been. I was so sick it through me into A Fib, and blood pressure was dangerously low. I had my second FMT in November (up from the bottom) and was hoping all would be well. I am still getting sick. Went to hospital and tested negative for C DIFF. I am not getting as sick right now(low blood pressure and A Fib), but still vomiting and diarrhea. I feel bad for a couple days then better again. This is my sixth Mini episode since my FMT in February. I am so tired of feeling this way. I am hoping there are others on here that might give me some input. I'm sure like many others, i have tried to pin point what might be causing this, triggers etc... One thing that sticks out in my head is my house. This all started about the same time we bought our new house. I have been admitted to the hospital for this 12 times over the past ten years or so, and all but two have been when i was either at my house or just left that day or the day before. I travel for work, and am rarely home. Only home for 19 days in 2021 for example. I have been home since November and have been having all these mini episodes since FMT, so just thinking there might be something in the house causing it?? Just searching for any help.
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1 ReactionI have been considering a fecal transplant. Do I need to contact a doctor now before I get c-diff again? Does c-diff need to be active to have the transplant? Any information you have would greatly be appreciated. Thank you.
Dr. Goldman in Iowa City has done a thousand transplants for C-Diff. He's @ the University of Iowa. Maria.
Have rC-diff - 7th time in less than 2 1/2 yrs. Tried all antibiotics (dificid, Rifaximin, etc.) for C-diff, plus human monoclonal antibody infusion two times (Bezlotoxumab). Vancomycin is only one that works, but only for 3 - 4 months.
Researching FMT, but have reservations. Is there anyone who has had FMT who is willing to share
after-effects, success/failure rate, and which procedure was used?
Thank you, Elaine
Hi Elaine,
I moved your question about fecal microbiota transplant for c-difficle to this existing discussion to help you easily connect with other members:
- Anyone had Fecal Microbiota Transplant (FMT) for C Difficile?
https://connect.mayoclinic.org/discussion/fecal-transplant-1/
Here's a list of other discussions that might interest you on:
FMT https://connect.mayoclinic.org/search/discussions/?search=fecal+transplant
C-difficile
https://connect.mayoclinic.org/search/discussions/?search=c+diff
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