Posted by wiggins32 @wiggins32, Nov 28, 2022 My heat goes out to you. I have Polycythmia/ Myelofibrosis (Leukemia) Born with Cold anaphylaxis shock = never got diagnosed until I moved to Florida.) Home Hospital Study with weekly nurse growing up., years with vocational rehabilitation; I can't work , trying to get on SSI and judges don't believe in rare diagnosis. Doctor notes; Can't work; Every time I worked, cough, vomit, lost my voice, pass out, racy heart (zoom to 200/150 BP) not zoom down All the cardiologist told me my heart was fine, only 50 years later I must of had unknow blood disease; like my 40 year old who died 2 hours after she saw doctor, that said you broke your leg, didn't listen to other symptoms. your fine go home = death! Same with cold urticaria; Facebook CIU; 1# issue It's life-threatening and people laugh and make fun of you. No one believe you can died feeling cold. Lucy didn't have cold urticaria; unknown blood disorder - corner couldn't diagnosed it; but he found blood disorder the doctors all missed. Because it's rare , we get passed, skip and ignored. I'm sorry