Iron Deficiency Anemia: At what ferritin level do you get infusions?

Posted by brittanylee @brittanylee, Mar 8, 2022

Does anyone know what ferritin level you need to have to get iron infusions? I feel so exhausted but mine is at 26. They haven’t found the exact cause of my anemia, maybe heavy periods, had Injectafer in the past. Having a very hard time getting infusions ordered again. Please help!

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They didn't do the Ferritin level this time. My hemoglobin was 7.8 and red blood cell count 2.81. Will have an infusion today and schedule the others, I usually 8 of them once a week. I thought I got rid of the problem when I quit Methotrexate, which pushed me into blood transfusions which are worse because blood typing takes forever and the transfusion which usually starts at 1:00 a,m makes me bleary eyed when I go home. Found another reason for the possible anemia cause. Working on that now. At least I have graduated from blood transfusions. When I had to them, I was weak I could not walk.

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Oooooo that’s a good hematologyst question an lab reports an history you know ur body better then most mds keep on your drs how bad your body signals are yelling at you!
Not everyone is sane numbers! Get thyroid tested too! And a igg series tests by Immunologyst !
I’ve been anemic my entire life and iron levels and ferritin levels differ . Must be careful not to much ferritin iron given they do have complications ! When u start craving ice or dirt time to really seek help! That very low iron

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@amandajro

Hello @jamislp and welcome to Mayo Clinic Connect. It is great that you've joined Connect as your daughter is going through this to get support!

First, you will notice that I have moved your post into an existing discussion on this topic which you can find here:
- Iron Deficiency Anemia: At what ferritin level do you get infusions?: https://connect.mayoclinic.org/discussion/iron-deficiency-anemia-is-terrible/

Members such as @roch and @hopeful33250 may be able to come in and share more with you, and you are also welcome to click the "View and Reply" from this notification and review the whole discussion as well.

In the meantime, do you want to elaborate a bit on the flagged areas you've been made aware of?

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I am 50, my oldest daughter 20, son 16, and youngest daughter 12. We all have anemia…low ferritin. As low as 4. We have all had iron infusions and my youngest is scheduled for her first. We all have fatigue which is made somewhat better after infusions. I’ve been sitting at 20ish since my last infusion 9 months ago. My oldest brother also has low ferritin and iron infusions. My 20 year old had anemiaID testing done and so far her doctors have been unable to read results. It’s crazy what we have been through! Rheumatologist, cardiologist, and a neurologist is suggested now!!! Anyone else have a strong family inheritance of low ferritin?

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@zebra1222

Oooooo that’s a good hematologyst question an lab reports an history you know ur body better then most mds keep on your drs how bad your body signals are yelling at you!
Not everyone is sane numbers! Get thyroid tested too! And a igg series tests by Immunologyst !
I’ve been anemic my entire life and iron levels and ferritin levels differ . Must be careful not to much ferritin iron given they do have complications ! When u start craving ice or dirt time to really seek help! That very low iron

Jump to this post

I’m 50. In 2015 my hgb was 13.3. Started munching ice in 2021 and ringing in ears (after my covid vaccine) but didn’t get checked out. Finally had cbc drawn in summer 2022 - hgb was 9.9 then came up to 10.something in Oct 2022. Now got a physical and labs drawn again. Hgb 9.8, ferritin 2.6, iron 15, iron sat 4%. Primary asked if I want oral or iv infusion. I was referred to hematology next week. Will they want to start me on oral first or am I so low where I need iv infusion? Planning colonoscopy soon. Still menstrual but nothing crazy - maybe 1 heavy day out of 5.
Exhausted! Headaches. Ears ringing. Ice crunching anemic.

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