Gastroparesis with severe symptoms!

Searching for some info about Gastroparesis, found this site and discussions, and it is informative. My gastroparesis was diagnosed upon visit to ER, and got a follow up for Endoscopy and colonoscopy. My symptoms cascaded from the Covid Virus, then added to the injury is the Covid jabbed, I am taking multiple medications to have a life, then when my stomach holding and stuck in my stomach, I am non-functional human being! turned into Zombie!!! On a liquid diet as of now. thank you all for the informations shared

I was diagnosed with gastroparesis in Nov 2022. I have stomach pain in the center under my breast bone that is always there somedays are better then others. Bloating and nausea come and go depending on what I put in my mouth. I don't know what mine came from but I believe it was either the mental health meds I was on or covid. My symptoms started 3 weeks after I had covid the 2nd time. I am now on no meds except my blood pressure and cholesterol and thyroid medications. I pray for a miracle for us all.

I have had all the symptoms you and everyone else is writing about for the last 5 years. It is a struggle each day with no answers. Some days are better than others. All I can say is we all are different and act differently to the food we eat. Still searching for answers here. Good luck.

Yes. I was diagnosed with gastroparesis a few months ago. Had bloating, horrible nausea, loss of 9 pounds I didn’t intend nor needed to lose, and acid reflux. Took tests noting I too have slow movt of food . My GI specialist
told me to cook my fruits and vegetables. Eat small portions . Eat slowly. Pepcid OTC helps. Felt much better but have a flare up now. Found that drinking hot Turmeric tea and ginger ( comes in a tea bag) is great, soothing, and love it mid day or after a meal. It’s herbal. There are no “ cureall” for this condition. Walking regularly ( try walking after a meal) has been helpful as well.

I had a Neuclear medicine test about five years ago, it showed I had significant gastro paresis. My gastro consultant died and I was never recalled to see anyone else, so didn't get any advice. I live with daily spewing and feeling bloated. I have a few auto immune conditions so the dizziness, and light-headedness, tiredness pain in chest, back pain etc. that others mention, can also tie in with them. I regulate my diet, not a lot of fibre, red meats aren't good, drink plenty of water, found that white sourdough bread works better for me than any other bread.

As of this moment replying to your frustrations.
I am on 3 days fasting. And total cleanse my gut.

I have been diagnosed with EGJOO and Mild Gastroparesis, Hashimoto disease, Neuropathy of feet. I have been on 1 stool softener, Gabapentin- 300 mg - 1 in morning and 2 at night to sleep. I have 5 pieces of black licorice and it helps to empty out. Gas-x 2 after every meal. Small meals are helpful. I had an esophagus dilation and Botox in pylorus valve. Dilation helped but Botox didn’t. Hope you find a good gastroenterologist.

I was diagnosed with this recently, though my case isn’t as severe as yours. 41% of my radioactive meal was still in my stomach after 4 hours. There are two drugs used to treat this condition. The first is Reglan. It caused severe anxiety in me, so I discontinued. The second drug is an old antibiotic called erythromycin. Unfortunately, that one had a steep copay that I could not afford. My physician is with a large university and really seems to know his stuff

Hope this helps!

I've had the condition for 20 years. (though symptoms are feeling full & stomach gas, continuing to keep me up at night; all contained in my stomach area). Seen every western MD, gastro doc & every alternative practitioner there is. And now, at 70, I'm seeing an ND (granted, out of pocket costs) & nutritionist who at least had me take a SIBO breath test. And while the Vagus nerve (which runs many organs including the digestive system's motility) can certainly be the culprit (& very difficult to stimulate, even with most drugs), the SIBO breath test - for me - revealed high levels of methane in my stomach over the course of a 3-hr (easy at-home) test. With that, a potential cause was a bacteria that can cause the motility issue, for which I took a 2-wk course of antibiotics (Rifaximin suggested). Since I felt no better, a very good nutritionist wanted to to me on a diet (based on the FODMap diet regime) for several weeks. ND also had me get an herbal aid: Atrantil for the gas symptoms. We'll see how that works after a week of taking 3x daily.
But even the nutritionist & ND admit that one can have slow stomach motility, which then allows the bacteria to form, or visa-versa. And as you know, that's the mystery. But at least a good nutritionist or ND (or even a GOOD gastro doc) should be recommending various digestive enzymes, bitters (taken before meals, ginger supplements (straight ginger tea - no sweetener; I drink 2-3 cups daily) can be helpful. You should try Iberogast (made by Bayer in Germany), though only available on-line. I've been taking yoga & done daily meditation, However, while those things haven't much worked for me, they CAN work wonders for others with this affliction, since (as you read in may of these blogs) every body of different & reacts differently to various herbs, drugs, exercises, & other protocols. I assume you've also had an endoscopy to check for general stomach/duodenum function, as well as (with a biopsy while they're doing it) for the bacteria H. Pilori? Again, you NEVER know what you may get a good 'hit' on.
So, in summary, just keep trying to see what may be found for your case & what may just work (even a little). Thanks for posting & good luck.

I have all the same symptoms you do and have been through all the same testing. I do have MS, which I understand is pretty common to get GP with MS. I also have COPD. I get very frustrated when no doctor has any answers for GP. The thing that helped me the most is when my primary doctor put me on Budesonide, which my Gastroentronologist laughed at and said that would never work. It worked way better than anything he had put me on. It is also frustrating when you eat on thing and things go fine. Then the next day you eat the same exact thing and it sets you off. I just wish there were more doctors who knew more about this disease. I am in Wyoming though, not a huge choice of doctors here.