Anyone here dealing with peripheral neuropathy?

efgh1020 - You are likely right, the first floor BR makes more sense. The odd part is that the steps for me are difficult because of bad knees. The BR and bath are there, we just need to make a few adjustments. If I read your post to my wife, she will say...see!

I remember the long PT process of learning to stand in place. Boy was that a balance trick., and when up on two feet, I would have to march or teeter to stay upright. They would also make me close my eyes and try to stand; finally one day I was frustrated at my inability to do so and asked “Why on EARTH would I ever intentionally stand up and keep my eyes closed???!!!” She just sweetly replied “You may want to take a shower and rinse your hair without getting shampoo in your eyes”. Well. They do seem to have all the right answers I admit. To this day, every time I rinse my hair in the shower I think of her comment (of course, I keep one hand on the shower safety bar whether I need to or not). Marching in place is a great example of what we do and how we improvise as needed as we find what positions and activities work for us individually. I hope you might get to where you can stand in place longer, with or without eyes open. Thank God for our helpful partners, I would be lost without mine.

I recently started Tegretol. I don't know yet how it will help but if you haven't tried it, you could give it a shot. I can keep my symptoms at bay for a good part of the day by massaging my feet with Voltaren gel, from the toes to the ankle then wearing warm socks and good shoes. I use the gel 3 to 4x a day.
I hope this helps

I am interested in anyone with PN that also has stiffness in their feet and ankles. I have tingling, numbness and some pain that is helped by Lyrica. However, right now, the stiffness is bothering me more than any of it. Sometimes I will flex my ankle and it seems to get "stuck" and it takes me a second to get it moving again. Any experience with this and any solutions would be greatly appreciated.

I think having a good physical therapist look at that could help. Physical therapy becomes part of the treatment as neuropathy progresses. They are knowledgeable people!

Debbie - We have a fiberglass stall showers and when my PN started, I got these suction cup grab bar holders, and they really work! They are 12 inches long - where else but Amazon! I think 2 for like $30. I have them in all bathrooms, and they are actually hard to get off. Great because you can put them where you want, I'm tall so I need them up high. Just thought I'd mention this for those who need balance when showering. Best yet, if you travel, take them with you.

YES, constant pain most of the night in joints and nerves. NECK BACK ARMS LEGS AND FEET. WHAT KIND OF DOCTOR CAN I SEE/I NEED HELP...
sugar was 94 THIS MORNING. insulin dependent diabetic for decades....

Thanks - what a perfect solution for the new home we purchased yesterday. I went out and bought some like you suggested, so can safely use the walk-in shower and can de-prioritize (maybe eliminate) getting permanent bars in the wall. Brilliant!!! Any thoughts for the toilet? For now, one hand on the toilet seat & the other on the sink counter gets me up, but I don’t think that’s a permanent solution, and those suction things don’t work as they do in fiberglass. I appreciate any ideas!!!