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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
Hi Bj87. I am so curious how low your RBC was to cause red cell transfusions, if you don't mind sharing? My RBC levels are below normal every CBC for past 5 yrs. Not in normal range even one time. Doctors don't seem concerned, but iron infusions don't seem to improve RBC levels. The chronic fatigue is debilitating. I'm curious what was the reason / diagnosis causing the transfusions for you? Have they helped you? Thank.you so much and warm regards.
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My hematocrit is what we watch. When ever it gets to 21or 22 I’ll get a unit of red blood cells. That usually gets me to 24 or 25. For a couple weeks. 27 is as high as it usually gets. A couple of weeks ago I was at 20 and got 2 units and it went up to 30 which is where the hemotolgist has always said he would be happy if he could get me there. At 27 or more I can function just fine. Still not for long with out resting. At 23 I am very tired. I am not sure if I have 2 problems (ET and anemia) or if it is all ET. I’ll ask tomorrow.
I hope this has been helpful.