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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (513)
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@bj87

I was anemic at least 30 + years ago and was put on hydroxyurea and was told it would be for the rest of my life. I am 87 now. I began having low red cell in the last few years and have had numerous red cell transfusions. Other than the low blood count and tiredness I have had zero symptoms. I can do anything I want as long as I rest before I get too tired. I always feel absolutely normal except for tiredness

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Replies to "I was anemic at least 30 + years ago and was put on hydroxyurea and was..."
wiggins32 | @wiggins32 | Jan 15, 2023

Hi Bj87. I am so curious how low your RBC was to cause red cell transfusions, if you don't mind sharing? My RBC levels are below normal every CBC for past 5 yrs. Not in normal range even one time. Doctors don't seem concerned, but iron infusions don't seem to improve RBC levels. The chronic fatigue is debilitating. I'm curious what was the reason / diagnosis causing the transfusions for you? Have they helped you? Thank.you so much and warm regards.

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