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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Nov 4 2:57pm | Replies (2012)

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@itchyrich

In 1992, at age 51, I had a large melanoma removed from my back. At that time I was getting a lot of seborrheic keratoses, and some actinic keratoses, and had a kind of rash of small red spots on my chest. I saw another dermatologist who biopsied the red spots which turned out to be Grover's Disease. Other than annual full body exams for a possible recurring melanoma and a few basal cell carcinomas removed, I didn't have any more problems until January 2007. The Grover's was always there but didn't seem to bother me.

At the end of 2006, I retired and moved from a foggy climate to a more dry climate. By January 2007, I started having terrible itching on my chest and back. A new dermatologist again biopsied the red spots and they were still Grover's. He prescribed ointments, including a pretty expensive one (Dovenex), but none of them helped very much. The only thing that sort of worked, out of many tried, was Eucerin Itch Relief. Most of the time I was reading and posting on a website called Skincell. There were many people with many wild (IMO) theories as to what causes Grover's. Some attributed it to the mercury in their dental fillings and were having all their fillings removed and redone. In addition to the itching, the red spots often got a little crusty and would sting if I got sweaty.

I finally got an appointment with Dr. Jack Resnick at UCSF in June 2008. He prescribed Gabapentin (Neurontin), 300 mg every night and the itch went away. It was gone until about June 2021 when it started coming back slowly. I don't know if the Gabapentin really worked or the disease just went away for 13 years.

UCSF was across two bridges and about 35 miles away so I had found a dermatologist closer to home for my annual exams. As the itch became as bad as it's ever been, I've tried to get the new dermatologist and my PCP to prescribe something to help. The derm prescribed Triamcinolone Acetonide Cream, which can cause or worsen glaucoma. As my wife has some serious glaucoma, I couldn't risk it. I used the Eucerin Itch Relief for a few months then my PCP prescribed Hydroxyzine which gives me some relief as it makes me go to sleep. When it wears off after about six to seven hours, the itching come back. To honest, I'm not sure if the widespread keratoses don't also itch.
Apparently, the website Skincell is no longer what it used to be and this site is one where I can find other people discussing Grovers. I was hoping there had been some kind of breakthrough in the last 15 years. Apparently not. I'm now also on the Facebook Grover's page. I'm curious about the Cilantro and Chlorella smoothie approach but I'm one of those people to whom Cilantro tastes like soap. I'm thinking about tablets of both of those.
This site allows me to see what other people are trying and, sometimes, succeeding with. I'm due for my annual visit to the dermatologist and I'll have something to discuss with him and maybe prompt him to become a little more interested in the problem.

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Replies to "In 1992, at age 51, I had a large melanoma removed from my back. At that..."

Hello ItchyRich
I did find that the Triamcinolone didn’t last more than 4 hours. My dermatologist want to get me pills, but I don’t like taking pills that might fix one thing but then cause another.
As for the smoothie, I’ve only been doing it for 3 days, and I believe it takes longer to help.
Here’s what I do and you don’t taste the cilantro.
I use a single cup blender.
4 stocks of Cilantro
4 strawberries
1 container of yogurt, vanilla or strawberry
4 teaspoons of honey
1-1/2 to 2 cups of milk
This cream made in China, in picture about sold on Amazon works very good. I can go all day.
Tubes are small, mostly you can just put a dab on each or area.
Now I messed mine up by eating shrimp, so she’ll fish are a problem. It flared up big time. That was two days ago and I’m starting to get some relief again.

I’m a member too on the Grover’s forum and it’s the best for information. Googling brings up a lot of info but not necessarily accurate compared to this forum. I did start the cilantro (have tried about all the recommendations and some may help and then stops helping and others don’t help at all - right now witch hazel and gold bond medicated powder is helping the best) actually ate the fresh but after a week got tired of messing with it keeping it fresh and smiling with green bits in my teeth. Decided to do the capsules and it’s been a couple weeks, so far my itching and the rash is not as extreme as it was so maybe it’s working? I know many say it could take weeks/months to see results so I’ll keep taking for another month. 🙏