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New and undiagnosed

Lung Health | Last Active: Dec 12, 2023 | Replies (131)

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@sueinmn

Here's how I would look at it. "Okay, I had a really bad and unfortunate case of undertreated pneumonia.. l ended up getting really sick, intubated, and scared to death. Awful! But it finally got the attention it deserved.
Now, I'm getting stronger, they have looked at my lungs twice and they are improving. My life is getting better, the pulmonologist can see I'm improving. Time to push myself gently and see how healthy I can get in the next 4 months..."
But that's me - having survived heavy metal poisoning from faulty hips - lost most of my hair, had 3 surgeries, developed tremors, was days from having my thyroid removed when they figured out it had reregulated itself. And a multiyear lung infection with many medications and horrible side effects. (At my last visit, after 4+ years of visits every 3 months, CT scans and sputum tests, the pulmonologist said "I'll see you in a year unless you get sick again")

How do you feel about waiting 4 months? Are you getting stronger? Did you put that @#$g pulse-ox away?
Sue

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Replies to "Here's how I would look at it. "Okay, I had a really bad and unfortunate case..."

Hi Sue, sure I'm ok with waiting 4 months and physically yes I'm getting stronger. I take the pulse ox out when I walk. In Sept during my walks, my sats were 94% and pulse 113.
Here we are in January. I still walk. 02 and pulse are still the same.
I'd hoped my sats would be higher during walks by now. I'm up everyday whereas I used to sit and watch tv everyday. Other than that the ox is put away.
I'm also losing my hair. I guess I'm afraid theres something they havent found. I suppose I figured I'd be ready to work by now. I cant believe what you've been through. Unreal. I appreciate your taking time with me. I'm really hypervigilant since this happened and I hate it. Hugs to you. If you need to get stern or tell me things I dont want to hear, tell me anyway. If you think I'm being impatient, tell me. Or going overboard obsessing about my 02 then tell me that too. And thank you!
Yvonne