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MCTD, Fibromyalgia, Reynauds

Autoimmune Diseases | Last Active: Sep 15, 2023 | Replies (78)

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@phillydee

Hi, this is my first post. I feel that you are describing so much of what I’m feeling. Chronic pain, fatigue, fog brain, internal tremors, twitching eyes, cold hands and feet, numbing at times. Burning pain in my legs, sore mouth, sore glands in my throat. I have several autoimmune issues, first being diagnosed with non alcoholic liver disease, PBC, next came thyroid disease, Restless leg disease then Lupus and Raynauds. I have been sick 11 years. Some days are better than others. I am taking medicines for liver, thyroid, Fibromyalgia and Lupus. I think I am in a flare right now and need additional meds which will be addressed in March. I wish I could tell you some good answer to help, but have not found the right combination yet. I have had the internal shaking for three years now, with three doctors not giving me any answers. My best regards to you.

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Replies to "Hi, this is my first post. I feel that you are describing so much of what..."

Welcome @phillydee, I know it must be difficult dealing with so many symptoms for as long as you have. I think it's good that you are actively seeking answers and trying to find something that helps. There are some other discussions that you may find helpful if you haven't already seen them.

– Mixed connective tissue disease – Looking for support: https://connect.mayoclinic.org/discussion/mixed-connective-tissue-disease-1
– How do you cope with Mixed Connective Tissue Disease?: https://connect.mayoclinic.org/discussion/mctd-265a2b/
– Raynaud's Syndrome https://connect.mayoclinic.org/discussion/raynauds-syndrome/
– Fibromyalgia: Anyone out there with the same diagnosis? https://connect.mayoclinic.org/discussion/fibromyalgia-20d1d0/

You mentioned that you have seen 3 doctors and not had any answers yet. Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?