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Need Help - Hematology won't do testing
Blood Cancers & Disorders | Last Active: Jan 30, 2023 | Replies (77)Comment receiving replies
Hi bscham. I have just started with a new primary. She is an internist, and I got very lucky getting in since it's usually several months for new patients. Interesting about my IgA...it is quite low (26), and prior IgA tests (2x over past 4 yrs), it was low both times. She is ordering evaluation by an Immunologist, but they aren't easy to find. My immunoglobins are all off. Also, I have had 2 endoscopic procedures but have never been told the results. I am gluten sensitive but ulcerative colitis is also possibility. 4 yrs with no answers. I have very bad ulcerative skin rashes for past 2 yrs. too. My eyes, tongue, skin, joints, muscles, etc., are all affected. I'm really hoping for answers + treatment soon. Thank you!
Replies to "Hi bscham. I have just started with a new primary. She is an internist, and I..."
Just out of curiosity, did these symptoms start after Covid vaccines ?
You have a right to all answers regarding your healthcare, labs and tests. Not only that, you can get copies of all your results. Most physicians have a patient online site you can enroll in and see those results as soon as the doctor signs off as seeing them. Best of luck to you and don't be shy about asking questions about your health or results. It's your life!
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I'm so sorry to hear about the non responsiveness of your doctors. It seems to me to be a problem when the doctor has no clue what is going on so instead of telling you that and seeking advice from colleagues they pretend that nothing bad is happening. YOU HAVE A RIGHT TO SEE YOUR MEDICAL RECORDS!!! Assuming you're in the USA but I would think it's the same in other countries. Are you being treated with meds? Creams? Anything to help your symptoms ? I hate these long waits to see a doctor with a glowing reputation only to find out it doesn't hold up!! I've been there so many times and God forbid you look online!! I had one doctor yell at me when I was sitting across from him looking up a medicine he wanted to prescribe to see side effects because I'm very allergic to inactive ingredients or simply won't put them in my body. Your challenge is finding someone to advocate for you. Since Covid, things have been very difficult but not impossible. You should not be suffering....I'm sorry.