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DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)Comment receiving replies
Replies to "Lori, What a blessing !!! Thank you !!! Hospital missed PV Nov 2020 but; Hospitalized same..."
Happy to help you find answers and offer some encouragement! I had AML, acute myeloid leukemia. Actually I was diagnosed just shy of 4 years ago. Can’t believe how quickly the time has sped past!
Several rounds of chemo got me to remission but because of the mutations which caused the AML, I needed a bone marrow transplant to prevent a relapse. I’m now 3 years 6 months post transplant in a durable remission!
Happy-dancing through life now. ☺️ It’s my pleasure to be able to encourage anyone else experiencing a blood cancer that you can get through this! It’s important to stay positive. Here’s my story:
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/
Chronic myeloid leukemia can be very slow to progress, which is fortunate. It gives you time to find a good oncologist and get treatment options for your particular case.
You may have already read some of these articles but this is a fairly good one from Healthline.com. It explains CML and its symptoms. If you read down, you’ll read why CML can cause bone pain. The proliferation of white blood cells expand beyond the marrow and reach to the outer bone and joints.
https://www.healthline.com/health/cml/chronic-myeloid-leukemia-symptoms
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Another informational article worth mentioning was this diagram about how CML affects the body, again from Healthline.com
https://www.healthline.com/health/chronic-myeloid-leukemia/living-with-cml/effects-of
If you like to get a second opinion you’re always welcome to contact Mayo Clinic here: http://mayocl.in/1mtmR63
Are you currently receiving any treatment for the CML or are you in a watchful waiting window?