← Return to MGUS with Polycythemia Vera (PV)

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MGUS with Polycythemia Vera (PV)

Blood Cancers & Disorders | Last Active: May 6, 2023 | Replies (38)

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@loribmt

Hello, @vnvet, Welcome to Mayo Clinic Connect.
Polycythemia vera is a type of chronic leukemia (blood cancer) that causes your bone marrow to produce too many red blood cells. It generally progresses very slowly. The major risk from the blood disorder is blood clots.
While it’s not as aggressive as some forms of leukemia you’re still needing to list it on a health questionnaire has having a blood cancer.

I’m posting some links to information about PV for you below from our Mayo Clinic site and also The Cleveland Institute.
https://www.mayoclinic.org/diseases-conditions/polycythemia-vera/symptoms-causes/syc-20355850
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https://my.clevelandclinic.org/health/diseases/17742-polycythemia-vera
Was your diagnosis of PV recent or has this been going on for a while? Are you in treatment?

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Replies to "Hello, @vnvet, Welcome to Mayo Clinic Connect. Polycythemia vera is a type of chronic leukemia (blood..."

Thanks for your reply Lori. I was diagnosed with PV initially by my primary care physician at the VA a little over a year ago. I have been in treatment with a civilian oncologist, initially requiring phlebotomy and drug (hydroxyurea) but after 4 months, just the drug. I've been stable with lab numbers since then. I'm a combat veteran of Vietnam with a lot of exposure to "agent orange" and am curious about the relationship of PV and other suspicious medical conditions that have shown up since my return (skin and lung) that have not yet been recognized by the VA in it's list of "accepted" links to the defoliants that were used.