Autoimmune Fatigue and/or Chronic Fatigue

At 70, after YEARS of telling doctors about the lupus that ran in my family and being told (without tests) that I DID NOT have lupus (they always looked at my face only), my own doctor finally ran the test. He said he thought I had psoriatic arthritis because from my knees down to my ankles I had for years suffered a itchy, bright red, rash with some blistering.
Well, guess what? SLE and Hashimoto’s!! And I’ve had previously Graves Disease and a recurrence of a “rare” invasive skin cancer in the genital area, after 30 years.
So sad the medical community is so uncaring until it becomes epidemic. And I, too, have suffered chronic fatigue, fibromyalgia, sinus headaches (migraines!) almost daily. Never got any apologies for years of suffering without any support.

At 70, after YEARS of telling doctors about the lupus that ran in my family and being told (without tests) that I DID NOT have lupus (they always looked at my face only), my own doctor finally ran the test. He said he thought I had psoriatic arthritis because from my knees down to my ankles I had for years suffered a itchy, bright red, rash with some blistering.
Well, guess what? SLE and Hashimoto’s!! And I’ve had previously Graves Disease and a recurrence of a “rare” invasive skin cancer in the genital area, after 30 years.
So sad the medical community is so uncaring until it becomes epidemic. And I, too, have suffered chronic fatigue, fibromyalgia, sinus headaches (migraines!) almost daily. Never got any apologies for years of suffering without any support.

@sharing I can understand your frustration, and welcome you to Mayo Clinic Connect. Here, we have a unique opportunity to share with others in our similar situations.

Like you, I live with some autoimmune conditions. In fact, my ultra-rare kidney disease that for several years was chalked up to a symptom of Systemic Lupus [diagnosed in 1988!], is actually an autoimmune disease.

Often I have compared my body to having its own private civil war with everything that is going on, and often the symptoms seem to cross over each other! That's the thing with different conditions. They may mimic others, and unless presented with clear and convincing evidence, most doctors won't go to the expense and time to get an accurate diagnosis. Add in to the mix when our symptoms are inconsistent, and well, hopefully you can see the dilemma we all face, doctors and patients alike.

Live each day to the best we can. Take care of yourself the best you can, and be aware what will work for you that day may not work another day. We are each individuals, and miracle machines no matter. What are you doing today to have a "good" day?
Ginger

Hi! I am wondering if anyone has had what I have had?
I only know that at age 30, in the perineum area, I was diagnosed with a “rare form of skin cancer”. The gynecologist cut out a patch of skin about the size of a quarter, said it could come back. “Carcinoma not otherwise specified”.
It did come back 30 years later and the gynecologist missed it but his ARNP pointed it out and it was removed without general surgery.
How frequent is this?

Sharon Braido
Sent from my iPad

@sharing There can be a renewal of skin cancer conditions. I am sure your dermatologist would be able to relate several examples to you. Thirty years ago, what may have been labeled as “Carcinoma not otherwise specified” would have a different description today.
Ginger

TY, Ginger. I’ve found dermatologists and would like to find someone to examine ALL my skin…everything everywhere....but it looks as though there are no doctors that would do both at once. Am I correct?
Thank you so much for your kindness.❤️

TY, Ginger. I’ve found dermatologists and would like to find someone to examine ALL my skin…everything everywhere....but it looks as though there are no doctors that would do both at once. Am I correct?
Thank you so much for your kindness.❤️

What is MAC?

My husband had melanoma years ago. He sees the dermatologist every year who checks him head to toe front and back.You should be able to find one as well.