1. < Neuropathy

B-6 vitamin danger!

Posted by Lynsorensen @lynsorensen, Dec 11, 2017

With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don't need him anymore! And I don't. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.

Interested in more discussions like this? Go to the Neuropathy Support Group.

terrilea57 | @terrilea57 | Apr 3, 2022
In reply to @johnbishop "Welcome @terrilea57, Thanks for the reference link. Have you also been diagnosed with neuropathy?" + (show)
@johnbishop

Welcome @terrilea57, Thanks for the reference link. Have you also been diagnosed with neuropathy?

Jump to this post

Yes. My neuropathy started last fall and at that time I was diagnosed with low B12 which can cause neuropathy. After my b12 was up ( and I had been supplementing with a B complex) I had more blood work done with a neurologist. My b6 was high at that time. More tests confirmed I have small fiber neuropathy. Still not sure of what caused what. My symptoms started about a month after the C19 vacinne… I came across the website and Facebook group on b6 toxicity that I mentioned above and have been encouraged by the results many people have reported.

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3 replies
anjelsallaroundu | @anjelsallaroundu | Apr 3, 2022
In reply to @artscaping "Good afternoon @tincryan, I am sorry that you are not able to try medical cannabis to..." + (show)
@artscaping

Good afternoon @tincryan, I am sorry that you are not able to try medical cannabis to help you at night. Gabapentin helps calm down the tingles and numbness in my hands. Yet I have only found relief from medical cannabis. Has your clinician talked with you about 'SFN (small fiber neuropathy)? Do you have an educational medical center near you in KS?

I see that you have had some significant discussions with @johnbishop and others. Unfortunately, I have relied on medical cannabis for several years. The only other nighttime medication that helped me was Nortriptyline. Perhaps it would be worth seeing how your clinician feels about that medication.

Here is the current status of cannabis in KS. It does look like there may be some improvement in the laws in 2022. "The 2022 session has convened, and medical cannabis is on the agenda for the Senate. Just before the legislature adjourned its 2021 veto session, the Kansas House of Representative approved a bill that would legalize medical cannabis. The bill has picked up where it left off — to be considered by the Senate. Originally, the bill was to be heard in the Senate Federal and State Affairs Committee. The Senate President has moved the bill to the Senate Interstate Cooperation Committee, which he chairs. It has not yet been scheduled for a hearing."

May you be safe, free, and protected from inner and outer harm.
Chris

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Does the medical cannabis really relieve the pain?I currently have bad neuropathy but I don’t know what kind it it.they said it’s from diabetes but I’ve only had diabetes for a year or so..and noticed the neuropathy immediately after..🙁 the pain,burning,heat are the worst but I have numbness too

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Apr 4, 2022
In reply to @terrilea57 "Yes. My neuropathy started last fall and at that time I was diagnosed with low B12..." + (show)
@terrilea57

Yes. My neuropathy started last fall and at that time I was diagnosed with low B12 which can cause neuropathy. After my b12 was up ( and I had been supplementing with a B complex) I had more blood work done with a neurologist. My b6 was high at that time. More tests confirmed I have small fiber neuropathy. Still not sure of what caused what. My symptoms started about a month after the C19 vacinne… I came across the website and Facebook group on b6 toxicity that I mentioned above and have been encouraged by the results many people have reported.

Jump to this post

Thank you for update @terrilea57. Learning as much as you can about your symptoms and neuropathy can help you be a better advocate for your health conditions. If you haven't already seen these two sites, you might find them helpful in learning about neuropathy and different treatments that people have found helpful.

-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

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4846 | @4846 | Jan 8, 2023

How did you test for High B6 ?

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4846 | @4846 | Jan 8, 2023
In reply to @terrilea57 "Yes. My neuropathy started last fall and at that time I was diagnosed with low B12..." + (show)
@terrilea57

Yes. My neuropathy started last fall and at that time I was diagnosed with low B12 which can cause neuropathy. After my b12 was up ( and I had been supplementing with a B complex) I had more blood work done with a neurologist. My b6 was high at that time. More tests confirmed I have small fiber neuropathy. Still not sure of what caused what. My symptoms started about a month after the C19 vacinne… I came across the website and Facebook group on b6 toxicity that I mentioned above and have been encouraged by the results many people have reported.

Jump to this post

How did they test your B6.
Were you at toxic levels.
Quest or Labcorp?

REPLY
4846 | @4846 | Jan 8, 2023
In reply to @terrilea57 "Yes. My neuropathy started last fall and at that time I was diagnosed with low B12..." + (show)
@terrilea57

Yes. My neuropathy started last fall and at that time I was diagnosed with low B12 which can cause neuropathy. After my b12 was up ( and I had been supplementing with a B complex) I had more blood work done with a neurologist. My b6 was high at that time. More tests confirmed I have small fiber neuropathy. Still not sure of what caused what. My symptoms started about a month after the C19 vacinne… I came across the website and Facebook group on b6 toxicity that I mentioned above and have been encouraged by the results many people have reported.

Jump to this post

Have you found answers yet for your neurapathy. Is it small fiber neurapathy

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1 reply
4846 | @4846 | Jan 8, 2023

What test did Mayo do to diagnose the high B6 levels

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 9, 2023
In reply to @4846 "Have you found answers yet for your neurapathy. Is it small fiber neurapathy" + (show)
@4846

Have you found answers yet for your neurapathy. Is it small fiber neurapathy

Jump to this post

@4846, I'm not sure @terrilea57 is still following Connect. Her last post was April of last year here - https://connect.mayoclinic.org/comment/697416/.

I believe this is the test that Mayo uses to check for high or low levels of vitamin B6.
-- Vitamin B6 Profile (Pyridoxal 5-Phosphate and Pyridoxic Acid), Plasma
https://www.mayocliniclabs.com/test-catalog/Overview/42360

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rosaliemarie | @rosaliemarie | Jan 10, 2023

I am new to this site and am not sure what I can offer, but I would like to get some input on stem cells. I apologize if this has already been discussed. Recently, I went to a “clinic” called NIVA Health. They offer stem cell therapy along with nutrition, injections of B12, an infrared “boot” therapy, acoustic sound therapy. All of this, of course, comes at a high price tag and obviously no guarantees. In doing research on stem cells, I have read that the most success comes from using your own. They use umbilical cord stem cells. I have made the decision not to go forward with this “therapy.” Too many risks and not enough data. Can anyone offer any insight to what I have mentioned here?

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