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Waldenström's Macroglobulinemia

Blood Cancers & Disorders | Last Active: Apr 23 10:15am | Replies (132)
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@danputz

I am just over 1000 . from what i researched that is not terrible . I do have tingling and some stinging in my feet and some tingling in my fingers as well. i also get light headed when i go from sitting to standing up .I am new to this site and thought i would reach out and maybe get some answers as i am having a hard time finding some .I do not know anyone personally that has this that i can talk to . Thanks for your interest!!!

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Replies to "I am just over 1000 . from what i researched that is not terrible . I..."
michaelah | @michaelah | Jul 19, 2023

I have the similar symptoms and have gotten 12 infusions of Rituxan over the course of a year. WM is better (reduced from bone marrow biopsy) but neuropathy is worsening. Just got an anti MAG test showing > 70000. you might consider this test.

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